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Social care and neurodisability. [electronic resource].

Subjects: Nervous System Diseases; Patient Advocacy -- legislation & jurisprudence; Electronic journalsEngland

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NUTRITION AND NEURODISABILITY

• Authors : Peter B. Sullivan; Guro L. Andersen; Morag J. Andrew

Subjects: Developmentally disabled children--Nutrition; Children with disabilities--NutritionMEDICAL / Neurology; HEALTH & FITNESS / Diet & Nutrition / Nutrition

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Pilot Testing of a Co-adapted Group Programme for Parents/Carers of Children With Complex Neurodisability (ENCOMPASS)

• Source: A Co-adapted Community-based Participatory Group Programme for Parents/Carers of Children With Complex Neurodisability (ENCOMPASS): A Pilot and Feasibility Study

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Gastro-oesophageal Reflux and NeuroDisability (Cerebral Palsy) in CHILDren (GRANDCHILD)

• Authors : British Society of Paediatric Gastroenterology, Hepatology and Nutrition

• Source: Using the Paediatric Gastroesophageal Reflux Disease Symptom and Quality of Life Questionnaire (PGSQ) in Children With Cerebral Palsy: a Preliminary Validation StudyKleinman L, Nelson S,

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Nebulised Hypertonic Saline to Decrease Respiratory Exacerbations in Neuromuscular Disease or Neurodisability (SPICE-UP)

• Authors : Nottingham University Hospitals NHS Trust; Royal Brompton & Harefield NHS Foundation Trust; Pari Pharma GmbH

• Source: Effectiveness of Nebulised Hypertonic Saline to Decrease Respiratory Exacerbations in People With Neuromuscular Disease or Neurodisability: a Phase 2 Open Label Pilot

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Preventing Childhood Neurodisability.

• Authors : MUHAMMAD ISMAIL, Hussain Imam¹

• Source: Malaysian Journal of Medical Sciences. 2024, Vol. 31 Issue 2, p1-5. 5p.

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Informing creation of the FEEDS Toolkit to support parent-delivered interventions for eating, drinking and swallowing difficulties in young children with neurodisability: intervention use by neurodevelopmental diagnosis and healthcare professional role

• Authors : Lindsay Pennington; Jill Cadwgan; Helen Taylor

Subjects: Pediatrics; RJ1-570

• Source: BMJ Paediatrics Open, Vol 8, Iss 1 (2024)

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Planned and unplanned hospital admissions and health-related school absence rates in children with neurodisability: Protocol for a population-based study using linked education and hospital data from England. [version 1; peer review: 1 approved, 2 approved with reservations]

• Authors : Ruth Gilbert; Ania Zylbersztejn; Ayana Cant

Subjects: neurodisability; school absence; hospital admissions

• Source: NIHR Open Research, Vol 4 (2024)

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Profiles of vulnerability for suicide and self-harm in UK prisoners: Neurodisability, mood disturbance, substance use, and bullying.

• Authors : Kent, Hope¹ (AUTHOR) ; Magner-Parsons, Bella¹ (AUTHOR); Leckie, George² (AUTHOR)

• Source: PLoS ONE. 1/3/2024, Vol. 19 Issue 1, p1-15. 15p.

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Being a sibling of a youth with a neurodisability: A qualitative study about the roles and responsibilities during the transition to adulthood

• Authors : Revalidatiegeneeskunde Onderzoek; Brain; Child Health

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Evaluating a community respiratory physiotherapy service for children with neurodisability.

• Authors : Smith, Samantha; Flanigan, Moira; Haynes, Sarah

Subjects: Humans; Respiratory Tract Infections; Hospitalization

• Source: BMJ open quality. 11(1)

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Identification of the needs of children with neurodisability and their families at different stages of development: A qualitative study protocol.

• Authors : Roldán-Pérez, Patricia¹ (AUTHOR); San Miguel-Pagola, Marta¹ (AUTHOR); Doménech-García, Víctor¹ (AUTHOR)

• Source: PLoS ONE. 9/8/2023, Vol. 18 Issue 9, p1-12. 12p.

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Rebound for Respiratory in School Aged Children and Young People With Neurodisability (RforR)

• Authors : UCL Great Ormond Street Institute of Child Health; Jon Marsden, Professor of Rehabilitation

• Source: A Single Case Study to Explore the Impact of Community-based Rebound Therapy on Chest Health Outcomes in School Aged Children and Young People With Neurodisability and

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Development of a reliable clinical assessment tool for meningoencephalitis in dogs: The neurodisability scale

• Authors : Rita Gonçalves; Thomas W. Maddox; Stephanie Phillipps

Subjects: dog; MUO; NDS

• Source: Journal of Veterinary Internal Medicine, Vol 37, Iss 3, Pp 1111-1118 (2023)

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Profiles of vulnerability for suicide and self-harm in UK prisoners: Neurodisability, mood disturbance, substance use, and bullying

• Authors : Hope Kent; Bella Magner-Parsons; George Leckie

Subjects: Medicine; Science

• Source: PLoS ONE, Vol 19, Iss 1 (2024)

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Mechanically assisted cough strategies: user perspectives and cough flows in children with neurodisability

• Authors : Brit Hov; Tiina Andersen; Michel Toussaint

Subjects: Medicine

• Source: ERJ Open Research, Vol 10, Iss 1 (2024)

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Interventions to improve continence for children and young people with neurodisability: a national survey of practitioner and family perspectives and experiences

• Authors : Susan Ball; Stuart Logan; Helen Eke

Subjects: Pediatrics; RJ1-570

• Source: BMJ Paediatrics Open, Vol 8, Iss 1 (2024)

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Parent‐to‐parent support for childhood neurodisability: A qualitative analysis and proposed model of peer support and family resilience.

• Authors : McCrossin, Jeffrey¹ ; Lach, Lucyna¹

• Source: Child: Care, Health & Development. May2023, Vol. 49 Issue 3, p544-554. 11p. 1 Diagram, 1 Chart.

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Participation: Optimising Outcomes in Childhood-onset Neurodisability

• Authors : Christine Imms; Dido Green

Subjects: Nervous system--Diseases; Neurology; Children with disabilitiesMEDICAL / Neurology; MEDICAL / Internal Medicine; MEDICAL / Nursing / General

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Behavioral Strength and Difficulty Profiles among Children with Neurodisability

• Authors : Emily Gardiner; Anton R. Miller; Lucyna M. Lach

Subjects: Intellectual Disability; Children; Neurodevelopmental Disorders

• Source: Journal of Developmental and Physical Disabilities. 2021 33(2):163-179.17

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Social prescribing for children and young people with neurodisability and their families initiated in a hospital setting: a systematic review

• Authors : Katie Gordon; Anna Purna Basu; Laura Gordon

Subjects: Medicine

• Source: BMJ Open, Vol 13, Iss 12 (2023)

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School to prison pipelines: Associations between school exclusion, neurodisability and age of first conviction in male prisoners

• Authors : Hope Kent; Amanda Kirby; Lee Hogarth

Subjects: School exclusion; Youth justice; Neurodisability

• Source: Forensic Science International: Mind and Law, Vol 4, Iss , Pp 100123- (2023)

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Lay Person–Legal actor communication dyads and neurodisability: Structural dynamics, risks, and contradictions

• Authors : Joseph A. Wszalek

Subjects: Neurodisability; Law; Cognition

• Source: Forensic Science International: Mind and Law, Vol 4, Iss , Pp 100122- (2023)

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Parenteral Nutrition in Pediatric Patients with Neurodisability: Current Perspectives

• Authors : White E; Mutalib M

Subjects: pediatric; neurodisability; parenteral nutrition

• Source: Pediatric Health, Medicine and Therapeutics, Vol Volume 14, Pp 11-17 (2023)

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Editorial: Current issues in sleep in children with neurodisability

• Authors : Jasneek Chawla; Laurie McLay; Moya Vandeleur

Subjects: sleep; neurodisability; pediatric

• Source: Frontiers in Sleep, Vol 2 (2023)

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Telehealth delivery of paediatric rehabilitation for children with neurodisability: A mixed methods realist evaluation of contexts, mechanisms and outcomes.

• Authors : Graham, Fiona¹ ; Williman, Jonathan²; Sutherland, Lena³

• Source: Child: Care, Health & Development. Jan2023, Vol. 49 Issue 1, p156-169. 14p. 7 Charts, 1 Graph.

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Neurodisability care in the time of COVID‐19.

• Authors : Arichi, Tomoki^1,2,3; Cadwgan, Jill^1,4,5; McDonald, Aoife^1,6

• Source: Child: Care, Health & Development. Nov2022, Vol. 48 Issue 6, p901-905. 5p. 2 Charts.

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Care in COVID: A qualitative analysis of the impact of COVID‐19 on the health and care of children and young people with severe physical neurodisability and their families.

• Authors : Cadwgan, Jill^1,2,3 ; Goodwin, Jane³; Arichi, Tomoki^1,4,5

• Source: Child: Care, Health & Development. Nov2022, Vol. 48 Issue 6, p924-934. 11p. 1 Diagram, 1 Chart.

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Parenteral Nutrition in Pediatric Patients with Neurodisability: Current Perspectives

• Authors : White,Emily; Mutalib,Mohamed

Subjects: Pediatric Health, Medicine and Therapeutics; Review; info:eu-repo/semantics/article

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Ethics in Child Health: Principles and Cases in Neurodisability

• Authors : Rosenbaum, Peter L; Ronen, Gabriel M; Dan, Bernard

Subjects: Nervous system--Abnormalities--Moral and ethical aspects; Pediatric neurology--Moral and ethical aspects; Pediatrics--Moral and ethical aspectsBUSINESS & ECONOMICS / Business Ethics

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Terminology and descriptions of navigation and related practices for children with neurodisability and their families: a scoping review

• Authors : Emily Gardiner; Vivian Wong; Grace Lin

Subjects: Neurodisability; Patient Navigation; Navigation

• Source: BMC Health Services Research, Vol 22, Iss 1, Pp 1-16 (2022)

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Identification of the needs of children with neurodisability and their families at different stages of development: A qualitative study protocol.

• Authors : Patricia Roldán-Pérez; Marta San Miguel-Pagola; Víctor Doménech-García

Subjects: Medicine; Science

• Source: PLoS ONE, Vol 18, Iss 9, p e0291148 (2023)

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Protocol of the BEST SIBS study: a qualitative case study to investigate the roles and responsibilities of siblings of youth with a neurodisability during health care transition

• Authors : Nguyen Linda; Jack Susan M.; Di Rezze Briano

Subjects: disability; health care transition; qualitative study

• Source: Journal of Transition Medicine, Vol 3, Iss 1, Pp 169-73 (2021)

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Pseudomonas aeruginosa infection in respiratory samples in children with neurodisability—to treat or not to treat?

• Authors : Gregson, Elizabeth¹ (AUTHOR); Thomas, Lowri¹ (AUTHOR); Elphick, Heather E¹ (AUTHOR)

• Source: European Journal of Pediatrics. Sep2021, Vol. 180 Issue 9, p2897-2905. 9p. 1 Color Photograph, 1 Diagram, 8 Charts, 1 Graph.

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Social participation to support good mental health in neurodisability.

• Authors : Brooks, Rob¹ ; Lambert, Charlotte¹; Coulthard, Laura¹

• Source: Child: Care, Health & Development. Sep2021, Vol. 47 Issue 5, p675-684. 10p. 2 Diagrams, 3 Charts.

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Developing the FEEDS toolkit of parent-delivered interventions for eating, drinking and swallowing difficulties in young children with neurodisability: findings from a Delphi survey and stakeholder consultation workshops

• Authors : Elaine McColl; Lindsay Pennington; Johanna Smith

Subjects: Pediatrics; RJ1-570

• Source: BMJ Paediatrics Open, Vol 6, Iss 1 (2022)

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Informing creation of the FEEDS Toolkit to support parent-delivered interventions for eating, drinking and swallowing difficulties in young children with neurodisability: intervention use by neurodevelopmental diagnosis and healthcare professional role

• Authors : Shaw, E; Pennington, L; Andrew, M

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'Filling in the gap': A qualitative case study about identity construction of siblings of youth with a neurodisability

• Authors : Nguyen, Linda; Jack, Susan M; Davis, Hanae ...

Subjects: identity construction; neurodisability; qualitative

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'There was nothing, just absolute darkness': Understanding the needs of those caring for children and young people with complex neurodisability in a diverse UK context: A qualitative exploration in the ENCOMPASS study.

• Authors : Prest, Kirsten; Wilson, Emma; Vassiliadou, Io

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Being a sibling of a youth with a neurodisability: A qualitative study about the roles and responsibilities during the transition to adulthood

• Authors : Nguyen, Linda; Jack, Susan M; Davis, Hanae ...

Subjects: disabilities; healthcare transition; qualitative research

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Interventions to improve continence for children and young people with neurodisability: a national survey of practitioner and family perspectives and experiences.

• Authors : Eke, H.; Ball, S.; Allinson, Annette

Subjects: Enuresis; Health services research; Neurodisability

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Antibiotics for the treatment of lower respiratory tract infections in children with neurodisability: Systematic review

• Authors : Marpole, Rachael M.; Bowen, Asha C.; Langdon, Katherine ...

• Source: Acta Paediatrica ; volume 113, issue 6, page 1203-1208 ; ISSN 0803-5253 1651-2227

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Scoping Review of Interventions to Promote Social Participation in Adolescents and Young Adults with Neurodisability

• Authors : Conall O'Rourke; Mark Linden; Gary Bedell

Subjects: acquired brain injury; autism spectrum disorder; attention deficit disorder

• Source: Open Journal of Occupational Therapy, Vol 8, Iss 1, Pp 1-22 (2020)

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Improving continence in children and young people with neurodisability: a systematic review and survey

• Authors : Helen Eke; Harriet Hunt; Susan Ball

Subjects: continence; neurodisability; child

• Source: Health Technology Assessment, Vol 25, Iss 73 (2021)

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26 Respiratory annual review for children & young people with neuromuscular conditions and complex neurodisability: a pilot study

• Authors : Sairah Akbar; Federica Trucco; Ruth Wakeman

Subjects: Medicine; Diseases of the respiratory system; RC705-779

• Source: BMJ Open Respiratory Research, Vol 8, Iss Suppl 1 (2021)

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Behavioral Strength and Difficulty Profiles among Children with Neurodisability.

• Authors : Gardiner, Emily¹ ; Miller, Anton R.¹; Lach, Lucyna M.²

• Source: Journal of Developmental & Physical Disabilities. Apr2021, Vol. 33 Issue 2, p163-179. 17p.

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Children with neurodisability and feeding difficulties: a UK survey of parent-delivered interventions

• Authors : Elaine McColl; Lindsay Pennington; Johanna Smith

Subjects: Pediatrics; RJ1-570

• Source: BMJ Paediatrics Open, Vol 5, Iss 1 (2021)

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Repeated onabotulinum neurotoxin A injections for drooling in children with neurodisability

• Authors : Bekkers, S.; Leow, T.Y.; Hulst, K. van

• Source: Developmental Medicine & Child Neurology; 991; 997; 0012-1622; 8; 63; ~Developmental Medicine & Child Neurology~991~997~~~0012-1622~8~63~~

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Social participation to support good mental health in neurodisability

• Authors : Brooks, R; Lambert, C; Coulthard, L

Subjects: Article; PeerReviewed

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Programmes to prepare siblings for future roles to support their brother or sister with a neurodisability: protocol of a scoping review

• Authors : Revalidatiegeneeskunde Onderzoek; Brain; Child Health

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