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Enrollment in Alzheimer's disease-focused research registries: altruistic and egocentric motivations.

• Authors : Hennessy M; Department of Communication, University of Delaware, Newark, DE, USA.; Bleakley A

Subjects: Alzheimer Disease* ; Motivation* ; Altruism*

• Source: Psychology, health & medicine [Psychol Health Med] 2025 Jul; Vol. 30 (6), pp. 1212-1227. Date of Electronic Publication: 2024 Nov 20.Publisher: Routledge Country of Publication: England NLM ID: 9604099 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1465-3966

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Predictors of DAPSA28 remission in patients with psoriatic arthritis initiating a first TNF inhibitor: results from 13 European registries

• Authors : Linde, Louise; Ørnbjerg, Lykke M.; Georgiadis, Stylianos ...

Subjects: Medical and Health Sciences; Clinical Medicine; Medicin och hälsovetenskap

• Source: Rheumatology (United Kingdom). 63(3):751-764

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Impact of patient characteristics on ASDAS disease activity state cut-offs in axial spondyloarthritis: results from nine European rheumatology registries

• Authors : Ørnbjerg, Lykke M.; Georgiadis, Stylianos; Kvien, Tore K. ...

Subjects: Medical and Health Sciences; Clinical Medicine; Medicin och hälsovetenskap

• Source: RMD Open. 10(4)

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Developing a standard dataset in the European registries for rare endocrine and bone conditions-a Melorheostosis dataset.

• Authors : Appelman-Dijkstra NM; Department of Medicine, Division of Endocrinology, Leiden University Medical Centre, Albinusdreef 2, Postbox 9600, 2300 RC, Leiden, The Netherlands. .; Cherenko M

Subjects: Melorheostosis*/Melorheostosis*/Melorheostosis*/epidemiology ; Registries* ; Rare Diseases*/Rare Diseases*/Rare Diseases*/epidemiology

• Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2025 Jul 01; Vol. 20 (1), pp. 331. Date of Electronic Publication: 2025 Jul 01.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172

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Cohort profile: the European Unified Registries On Heart Care Evaluation and Randomized Trials (EuroHeart)—acute coronary syndrome and percutaneous coronary intervention

• Authors : Bhatty, Asad; Wilkinson, Chris; Batra, Gorav ...

Subjects: Medical and Health Sciences; Clinical Medicine; Cardiology and Cardiovascular Disease

• Source: European Heart Journal - Quality of Care and Clinical Outcomes. 10(5):386-390

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Ethics practices associated with reusing health data: an assessment of patient registries.

• Authors : van den Akker, Olmo R.¹ (AUTHOR) ; Stark, Susanne¹ (AUTHOR); Strech, Daniel¹ (AUTHOR)

• Source: BMC Medicine. 12/4/2024, Vol. 22 Issue 1, p1-10. 10p.

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Differences in the response to TNF inhibitors at distinct joint locations in patients with psoriatic arthritis: results from nine European registries

• Authors : Ciurea, Adrian; Kissling, Seraphina; Götschi, Andrea ...

Subjects: Medical and Health Sciences; Clinical Medicine; Medicin och hälsovetenskap

• Source: Arthritis Research and Therapy. 27(1)

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Identifying trials run in India that are registered in other clinical trial registries: a cross-sectional study.

• Authors : Borah, Rishima¹ (AUTHOR); Samanta, Anwesha Dhal¹ (AUTHOR); Mendiratta, Jaishree¹ (AUTHOR)

• Source: BMC Medical Research Methodology. 9/12/2024, Vol. 24 Issue 1, p1-7. 7p.

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Safety of and response to electroconvulsive therapy during pregnancy: Results from population-based nationwide registries

• Authors : Arnison, Tor; Rask, Olof; Nordenskjöld, Axel ...

Subjects: Medical and Health Sciences; Clinical Medicine; Psychiatry

• Source: Acta Psychiatrica Scandinavica. 150(5):360-371

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How to establish and sustain a disease registry: insights from a qualitative study of six disease registries in the UK.

• Authors : Stubbs, Edmund¹ (AUTHOR); Exley, Josephine² (AUTHOR); Wittenberg, Raphael¹ (AUTHOR)

• Source: BMC Medical Informatics & Decision Making. 11/27/2024, Vol. 24 Issue 1, p1-17. 17p.

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