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Academic Journal

Scoping review of the recommendations and guidance for improving the quality of rare disease registries.

  • Authors : Tarride JE; Department of Health Research Methods, Evidence and Impact, Faculty of Health Sciences, McMaster University, Hamilton, Canada.; Centre for Health Economics and Policy Analysis (CHEPA), McMaster University, Hamilton, Canada.

Subjects: Rare Diseases* ; Registries*; Humans

  • Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2024 May 06; Vol. 19 (1), pp. 187. Date of Electronic Publication: 2024 May 06.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172

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Academic Journal

New data-driven method to predict the therapeutic indication of redeemed prescriptions in secondary data sources: a case study on antiseizure medications users aged ≥65 identified in Danish registries.

  • Authors : Mahmoud I; Department of Drug Design and Pharmacology, University of Copenhagen, Kobenhavn, Denmark.; Battini V

Subjects: Anticonvulsants*/Anticonvulsants*/Anticonvulsants*/therapeutic use ; Registries* ; Epilepsy*/Epilepsy*/Epilepsy*/drug therapy

  • Source: BMJ open [BMJ Open] 2024 Jun 06; Vol. 14 (6), pp. e080126. Date of Electronic Publication: 2024 Jun 06.Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN:

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Academic Journal

The role of cerebral palsy registries in improving patient care and collaboration: A global perspective.

  • Authors : Bakkeheim E; Oslo University Hospital, Department of Paediatric and Adolescent Medicine, National Resource Centre for Cystic Fibrosis, Oslo, Norway.

Subjects: Cerebral Palsy*/Cerebral Palsy*/Cerebral Palsy*/therapy ; Registries*; Humans

  • Source: Developmental medicine and child neurology [Dev Med Child Neurol] 2024 Jun; Vol. 66 (6), pp. 688-689. Date of Electronic Publication: 2023 Nov 20.Publisher: Blackwell Country of Publication: England NLM ID: 0006761 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1469-8749

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Academic Journal

Let's get "real" in sickle cell disease: Real-world data and long-term patients' registries.

  • Authors : Minniti CP; Division of Hematology, Albert Einstein College of Medicine, Bronx, New York, USA.

Subjects: Anemia, Sickle Cell*/Anemia, Sickle Cell*/Anemia, Sickle Cell*/epidemiology ; Registries*; Humans

  • Source: American journal of hematology [Am J Hematol] 2024 Jun; Vol. 99 (6), pp. 1019-1020. Date of Electronic Publication: 2024 Apr 11.Publisher: Wiley-Blackwell Country of Publication: United States NLM ID: 7610369 Publication Model: Print-Electronic Cited Medium: Internet ISSN:

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  • 1-10 of  285,609 نتائج ل ""Registries""