International Survey of Practice Patterns of Speech-Language Pathologists Working With Patients With Amyotrophic Lateral Sclerosis.

Publisher: American Speech-Language-Hearing Association Country of Publication: United States NLM ID: 9114726 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1558-9110 (Electronic) Linking ISSN: 10580360 NLM ISO Abbreviation: Am J Speech Lang Pathol Subsets: MEDLINE

Original Publication: Rockville Md : American Speech-Language-Hearing Association

Amyotrophic Lateral Sclerosis*/therapy ; Amyotrophic Lateral Sclerosis*/diagnosis ; Amyotrophic Lateral Sclerosis*/physiopathology ; Amyotrophic Lateral Sclerosis*/complications ; Speech-Language Pathology*/trends ; Deglutition Disorders*/therapy ; Deglutition Disorders*/diagnosis ; Deglutition Disorders*/etiology ; Deglutition Disorders*/physiopathology ; Practice Patterns, Physicians'*/trends ; Communication Disorders*/therapy ; Communication Disorders*/diagnosis ; Communication Disorders*/etiology; Humans ; Health Care Surveys ; United States ; Male ; Female ; Surveys and Questionnaires

Background: Speech-language pathologists (SLPs) evaluate and treat swallowing and communication impairments in individuals with amyotrophic lateral sclerosis (ALS). Standardized clinical practice guidelines for the evaluation and management of bulbar dysfunction in ALS have not yet been established. This study aimed to describe current international practice patterns of SLPs evaluating and treating bulbar dysfunction in ALS.
Hypothesis: Significant variability in practice patterns will exist across SLPs working in different clinical settings with varied resources.
Method: A 26-item Qualtrics survey was electronically distributed to SLPs via e-mail, social media, and professional discussion boards.
Results: Data from 245 respondents across 20 countries and 32 states within the United States were collected, with the final analysis including 214 respondents. Most respondents practiced in metropolitan areas (69%) and worked in multidisciplinary ALS clinics (41%), outpatient clinics (16%), and home health settings (17%). Cranial nerve examination (91%), swallow trials (79%), speech intelligibility tasks (85%), and diadochokinetic speech rates (65%) were frequently included in evaluations. Although 81% of clinics had access to instrumental swallowing evaluations, 32% reported performing them in fewer than 25% of patients. Communication evaluations were offered directly by 58% of clinicians, while 26% referred to an outside SLP and 16% collaborated with device representatives. Most clinicians provided patient education on swallowing (87%) and oral health (83%). However, managed practice varied widely, revealing no standardized treatment that is routinely offered. Barriers to optimal ALS care included time constraints, relevant clinical training, timing of treatment, addressing psychosocial components of care, access to resources, interdisciplinary communication, and insurance coverage (United States only).
Discussion: Findings reveal little consensus on symptomatic bulbar management and intervention timing. Results emphasize the urgent need for the development of a standardized minimal data set to best guide the evaluation and management of bulbar dysfunction in ALS.
Supplemental Material: https://doi.org/10.23641/asha.30249997.

Date Created: 20251013 Date Completed: 20251106 Latest Revision: 20251106

20251107

10.1044/2025_AJSLP-25-00064

41082679