نتائج البحث

A joint model for (un)bounded longitudinal markers, competing risks, and recurrent events using patient registry data

• Authors : Afonso, Pedro Miranda; Rizopoulos, Dimitris; Palipana, Anushka K.

Subjects: Statistics - Methodology

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Incidence of Malignancies and the Association with Biological Disease-Modifying Antirheumatic Drugs in Japanese Patients with Rheumatoid Arthritis: A Time-Dependent Analysis from the IORRA Patient Registry.

• Authors : Harigai, Masayoshi¹ (AUTHOR) ; Tanaka, Eiichi² (AUTHOR); Inoue, Eisuke^2,3 (AUTHOR)

• Source: Rheumatology & Therapy. Oct2024, Vol. 11 Issue 5, p1181-1195. 15p.

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Speech, Language, Hearing, and Otopathology Results from the International Smith-Magenis Syndrome Patient Registry

• Authors : Christine Brennan (ORCID 0000-0003-2952-2606); Mara Louise Smith; Rachael R. Baiduc (ORCID 0000-0001-9405-8438)

Subjects: Genetic Disorders; Developmental Disabilities; Delayed Speech

• Source: Journal of Speech, Language, and Hearing Research. 2024 67(3):917-938.22

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The United Kingdom Facioscapulohumeral Muscular Dystrophy Patient Registry

• Source: Moris G, Wood L, FernaNdez-Torron R, Gonzalez Coraspe JA, Turner C, Hilton-Jones D, Norwood F, Willis T, Parton M, Rogers M, Hammans S, Roberts M, Househam E, Williams M, Lochmuller H, Evangelista T.

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DeciPHer-ILD: A Real-world Patient Registry in Group 3 Pulmonary Hypertension Associated With Interstitial Lung Disease (PH-ILD)

• Source: DeciPHer-ILD: A Real-world Patient Registry in Group 3 Pulmonary Hypertension Associated With Interstitial Lung Disease (PH-ILD)

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Global Patient Registry to Monitor Long-term Safety and Effectiveness of Increlex® in Children and Adolescents With Severe Primary Insulin-like Growth Factor-1 Deficiency (SPIGFD).

• Source: Global Patient Registry to Monitor Long-term Safety and Effectiveness of Increlex® in Children and Adolescents With Severe Primary

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Global Patient Registry of Inherited Retinal Diseases (EYERD Registry)

• Source: Global Patient Registry of Inherited Retinal Disease

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Neurogenetics Patient Registry

• Authors : Deepa Soundara Rajan, Assistant Professor

• Source: Neurogenetics Program Patient Registry: Clinical and Genetic Diagnosis, Natural History Study, Translational Research and Biorepository

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RSSearch Patient Registry-Long Term Study of Use of SRS/SBRT

• Authors : VisionTree

• Source: Tipton KN, Sullivan N, Bruening W, Inamdar R, Launders J, Uhl S, Schoelles KM. Stereotactic Body Radiation Therapy [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US); 2011

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Radiation Medicine Patient Registry, Loma Linda University Medical Center

• Source: Slater JD. Development and operation of the Loma Linda University Medical Center proton facility. Technol Cancer Res Treat. 2007 Aug;6(4 Suppl):67-72. doi: 10.1177/15330346070060S411.Slater JD.

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