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Academic Journal

"It is like a jungle gym, and everything is under construction": The parent's perspective of caring for a child with a rare disease.

  • Authors : Currie G; School of Nursing and Midwifery, Faculty of Health, Community and Education, Mount Royal University, Calgary, Canada.; Szabo J

Subjects: Child Health Services* ; Needs Assessment* ; Neurodevelopmental Disorders*/Neurodevelopmental Disorders*/Neurodevelopmental Disorders*/psychology

  • Source: Child: care, health and development [Child Care Health Dev] Publisher: Blackwell Scientific Publications Country of Publication: England NLM ID: 7602632 Publication Model: Print-Electronic Cited Medium: Internet

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Academic Journal

Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders.

  • Authors : Currie G; School of Nursing and Midwifery, Faculty of Health, Community and Education, Mount Royal University, Calgary, Alberta, Canada.; Szabo J

Subjects: Neurodevelopmental Disorders* ; Rare Diseases*; Caregivers/Caregivers/Caregivers/*psychology

  • Source: International journal of qualitative studies on health and well-being [Int J Qual Stud Health Well-being] 2020 Dec; Vol. 15 Publisher: Taylor & Francis Country of Publication: United States NLM ID: 101256506 Publication Model: Print Cited Medium: Internet ISSN:

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Academic Journal

A model of well-being for children with neurodevelopmental disorders: Parental perceptions of functioning, services, and support.

  • Authors : Ritzema AM; Child Development Program, Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada.; Lach LM

Subjects: Attitude to Health*; Child Health Services/Child Health Services/Child Health Services/*organization & administration ; Child Welfare/Child Welfare/Child Welfare/*psychology

  • Source: Child: care, health and development [Child Care Health Dev] Publisher: Blackwell Scientific Publications Country of Publication: England NLM ID: 7602632 Publication Model: Print-Electronic Cited Medium: Internet

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Academic Journal

Care maps and care plans for children with medical complexity.

  • Authors : Adams S; Division of Paediatric Medicine, Department of Pediatrics, The Hospital for Sick Children, Toronto, Ontario, Canada.; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.

Subjects: Child Health Services/Child Health Services/Child Health Services/*organization & administration ; Delivery of Health Care/Delivery of Health Care/Delivery of Health Care/*organization & administration ; Multiple Chronic Conditions/Multiple Chronic Conditions/Multiple Chronic Conditions/*therapy

  • Source: Child: care, health and development [Child Care Health Dev] Publisher: Blackwell Scientific Publications Country of Publication: England NLM ID: 7602632 Publication Model: Print Cited Medium: Internet ISSN:

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Academic Journal

Family-centred care: a qualitative study of Chinese and South Asian immigrant parents' experiences of care in paediatric oncology.

  • Authors : Watt L; Department of Pediatrics, McMaster University, Hamilton, ON, Canada.; Dix D

Subjects: Child Health Services/Child Health Services/Child Health Services/*organization & administration ; Emigrants and Immigrants/Emigrants and Immigrants/Emigrants and Immigrants/*psychology ; Neoplasms/Neoplasms/Neoplasms/*ethnology

  • Source: Child: care, health and development [Child Care Health Dev] Publisher: Blackwell Scientific Publications Country of Publication: England NLM ID: 7602632 Publication Model: Print-Electronic Cited Medium: Internet

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Academic Journal

Evaluating family-centred service in paediatric oncology with the measure of processes of care (MPOC-20).

  • Authors : Klassen AF; Department of Pediatrics, McMaster University, 3A, 1200 Main Street W., Hamilton, ON L8N 3Z5, Canada. ; Dix D

Subjects: Child Health Services/Child Health Services/Child Health Services/*standards ; Delivery of Health Care/Delivery of Health Care/Delivery of Health Care/*standards ; Neoplasms/Neoplasms/Neoplasms/*therapy

  • Source: Child: care, health and development [Child Care Health Dev] Publisher: Blackwell Scientific Publications Country of Publication: England NLM ID: 7602632 Publication Model: Print-Electronic Cited Medium: Internet

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