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성인 혈우병 환자와 운동: 체계적 문헌고찰과 메타분석.

• Authors : 김두영¹; 전미양² ; 은영²

• Source: Journal of Korean Biological Nursing Science. 2024, Vol. 26 Issue 1, p1-15. 15p.

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The impact of bleeding event frequency on health-related quality of life and work productivity outcomes in a European cohort of adults with haemophilia A: insights from the CHESS II study.

• Authors : Young L; Pfizer Ltd, Walton-on-the-Hill Tadworth, Surrey, UK. .; Chen Y

Subjects: Quality of Life* ; Hemophilia A*; Male

• Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2023 Aug 03; Vol. 18 (1), pp. 227. Date of Electronic Publication: 2023 Aug 03.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172

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Breakthrough Bleeding Episodes at Minimum and Improvement in Quality of Life in a Child with Severe Hemophilia A with Inhibitors Treated with Emicizumab: A Case Report from Chile.

• Authors : Abarca-Villaseca V; Department of Pediatrics and Newborns, Hospital San Pablo, Coquimbo, Chile.; Soto-Arellano V

Subjects: Blood Coagulation Factor Inhibitors* ; Metrorrhagia*; Antibodies, Bispecific/Antibodies, Bispecific/Antibodies, Bispecific/*therapeutic use

• Source: The American journal of case reports [Am J Case Rep] 2021 Apr 22; Vol. 22, pp. e929598. Date of Electronic Publication: 2021 Apr 22.Publisher: International Scientific Information, Inc Country of Publication: United States NLM ID: 101489566 Publication Model: Electronic Cited Medium:

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Treatment regimens, patient reported outcomes and health-related quality of life in children with moderate and severe hemophilia A in China: using real-world data.

• Authors : Zhang, Luying¹ (AUTHOR); Zhang, Peng^1,2 (AUTHOR); Chen, Wen¹ (AUTHOR)

• Source: Orphanet Journal of Rare Diseases. 8/4/2023, Vol. 18 Issue 1, p1-9. 9p.

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The Effects of Exercise Training on Physical Activity Level, Daily Living Activities, and Participation in Children with Hemophilia.

• Authors : Atay, Canan¹ ; Tarakcı, Ela²; Yeldan, İpek²

• Source: Turkish Archives of Pediatrics. May2023, Vol. 58 Issue 3, p274-281. 8p.

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Evaluating Gene Therapy as a Potential Paradigm Shift in Treating Severe Hemophilia.

• Authors : Simmons, Dana; von Drygalski, Annette; Thornburg, Courtney

Subjects: Humans; Hemophilia A; Hemophilia B

• Source: BioDrugs: clinical immunotherapeutics, biopharmaceuticals and gene therapy. 37(5)

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Quality of life, self-reported outcomes and impact of education among people with moderate and severe hemophilia A: An integrated perspective from a Latin American country.

• Authors : Torres, Liliana¹ (AUTHOR); Peñuela, Oscar¹ (AUTHOR); Forero, Maria del Rosario¹ (AUTHOR)

Subjects: *PATIENTS' attitudes; *HEMOPHILIA; *QUALITY of lifeCOLOMBIA; MEDELLIN (Colombia)

• Source: PLoS ONE. 7/6/2023, Vol. 18 Issue 7, p1-18. 18p.

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Better Communication for Better Management of Persons with Hemophilia: Results from a Patients'-Clinicians' Project to Address the New Therapeutic Landscape.

• Authors : Banov, Laura¹ (AUTHOR) ; Linari, Silvia² (AUTHOR) ; Ambroso, Luigi³ (AUTHOR)

• Source: Journal of Clinical Medicine. Jan2024, Vol. 13 Issue 2, p568. 10p.

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Pain interferes with daily activities, emotions and sleep in adults with severe, moderate and mild haemophilia: A national cross-sectional survey.

• Authors : Chantrain VA; Research Group MOVANT, Department of Rehabilitation Sciences and Physiotherapy (REVAKI), University of Antwerp, Wilrijk, Belgium.; Haemostasis and Thrombosis Unit, Division of Hematology, Cliniques universitaires Saint-Luc, Université Catholique de Louvain (UCLouvain), Brussels, Belgium.

Subjects: Quality of Life*/Quality of Life*/Quality of Life*/psychology ; Hemophilia A*/Hemophilia A*/Hemophilia A*/epidemiology; Adult

• Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2023 Mar; Vol. 29 (2), pp. 521-529. Date of Electronic Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited Medium: Internet ISSN:

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Joint status and related risk factors in patients with severe hemophilia A: a single-center cross-sectional study.

• Authors : Zhao, Liang¹ (AUTHOR); Yang, Hongbin¹ (AUTHOR); Li, Yaochun² (AUTHOR)

• Source: Hematology. Dec2022, Vol. 27 Issue 1, p80-87. 8p.

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