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Polysomnographic titration of non-invasive ventilation in motor neurone disease (3TLA): study protocol for a randomised controlled trial.

• Authors : Berlowitz DJ; 3TLA Trial Group

Subjects: Noninvasive Ventilation*/Noninvasive Ventilation*/Noninvasive Ventilation*/methods ; Noninvasive Ventilation*/Noninvasive Ventilation*/Noninvasive Ventilation*/adverse effects ; Noninvasive Ventilation*/Noninvasive Ventilation*/Noninvasive Ventilation*/instrumentation

• Source: Trials [Trials] 2025 Jan 06; Vol. 26 (1), pp. 10. Date of Electronic Publication: 2025 Jan 06.Publisher: BioMed Central Country of Publication: England NLM ID: 101263253 Publication Model: Electronic Cited Medium: Internet ISSN: 1745-6215

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'A lightbulb moment': carers' experiences of behavioural symptoms in motor neurone disease before and after MiNDToolkit.

• Authors : Mioshi E; School of Health Sciences, University of East Anglia, Queen's Building Norwich Research Park, Norwich, NR4 7TJ, UK. .; Heal S

Subjects: Caregivers*/Caregivers*/Caregivers*/psychology ; Motor Neuron Disease*/Motor Neuron Disease*/Motor Neuron Disease*/psychology ; Motor Neuron Disease*/Motor Neuron Disease*/Motor Neuron Disease*/therapy

• Source: BMC neurology [BMC Neurol] 2024 Jul 09; Vol. 24 (1), pp. 238. Date of Electronic Publication: 2024 Jul 09.Publisher: BioMed Central Country of Publication: England NLM ID: 100968555 Publication Model: Electronic Cited Medium: Internet ISSN: 1471-2377

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Specialist referrals and diagnostic delays in motor neurone disease: Mapping patients' journey through hoops and hurdles in healthcare.

• Authors : Reynolds SJ; Department of Neurology, Lancashire Teaching Hospitals NHS Foundation Trust, PR2 9HT, United Kingdom. Electronic address: .; Chhetri SK

Subjects: Referral and Consultation*/Referral and Consultation*/Referral and Consultation*/statistics & numerical data ; Motor Neuron Disease*/Motor Neuron Disease*/Motor Neuron Disease*/diagnosis ; Motor Neuron Disease*/Motor Neuron Disease*/Motor Neuron Disease*/therapy

• Source: Clinical medicine (London, England) [Clin Med (Lond)] 2024 Jul; Vol. 24 (4), pp. 100228. Date of Electronic Publication: 2024 Jul 14.Publisher: Elsevier Ltd Country of Publication: England NLM ID: 101092853 Publication Model: Print-Electronic Cited Medium: Internet ISSN:

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End of life decision making when home mechanical ventilation is used to sustain breathing in Motor Neurone Disease: patient and family perspectives.

• Authors : Wilson E; School of Health Sciences, University of Nottingham, Nottingham, UK. .; Palmer J

Subjects: Motor Neuron Disease*/Motor Neuron Disease*/Motor Neuron Disease*/psychology ; Motor Neuron Disease*/Motor Neuron Disease*/Motor Neuron Disease*/therapy ; Motor Neuron Disease*/Motor Neuron Disease*/Motor Neuron Disease*/complications

• Source: BMC palliative care [BMC Palliat Care] 2024 May 02; Vol. 23 (1), pp. 115. Date of Electronic Publication: 2024 May 02.Publisher: BioMed Central Country of Publication: England NLM ID: 101088685 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-684X

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The need to consider 'temporality' in person-centred care of people with motor neurone disease.

• Authors : Harris DA; Faculty of Health, Psychology and Social Care, Manchester Metropolitan University, Manchester, UK.; Jack K

Subjects: Motor Neuron Disease*/Motor Neuron Disease*/Motor Neuron Disease*/therapy; Humans ; Death

• Source: Journal of evaluation in clinical practice [J Eval Clin Pract] 2023 Aug; Vol. 29 (5), pp. 802-807. Date of Electronic Publication: 2023 Jun 26.Publisher: Wiley-Blackwell Country of Publication: England NLM ID: 9609066 Publication Model: Print-Electronic Cited Medium: Internet ISSN:

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Non-invasive Spinal, Cortical, and Sensorimotor Biomarkers in Motor Neurone Disease

• Authors : Motor Neurone Disease Association, UK; Irish Research Council, IE; Health Research Board, IE ...

• Source: Developing Novel Non-invasive Electrophysiological Biomarkers of Dysfunction in Spinal and Cortical Pathways and Sensorimotor Impairments in Motor

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The incidence and prevalence of motor neurone disease in South Australia.

• Authors : Luker J; College of Medicine and Public Health, Flinders University, Adelaide, Australia and.; Flinders Medical Centre, Bedford Park, Australia.

Subjects: Amyotrophic Lateral Sclerosis*/Amyotrophic Lateral Sclerosis*/Amyotrophic Lateral Sclerosis*/epidemiology ; Neurodegenerative Diseases* ; Motor Neuron Disease*/Motor Neuron Disease*/Motor Neuron Disease*/epidemiology

• Source: Amyotrophic lateral sclerosis & frontotemporal degeneration [Amyotroph Lateral Scler Frontotemporal Degener] 2023 May; Vol. 24 (3-4), pp. 195-202. Date of Electronic Publication: Publisher: Taylor & Francis Country of Publication: England NLM ID: 101587185 Publication Model: Print-Electronic Cited Medium: Internet ISSN:

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When months matter; modelling the impact of the COVID-19 pandemic on the diagnostic pathway of Motor Neurone Disease (MND).

• Authors : Burchill E; Faculty of Life Sciences and Medicine, King's College London, London, United Kingdom.; Rawji V

Subjects: COVID-19*/COVID-19*/COVID-19*/diagnosis ; COVID-19*/COVID-19*/COVID-19*/epidemiology ; Motor Neuron Disease*/Motor Neuron Disease*/Motor Neuron Disease*/diagnosis

• Source: PloS one [PLoS One] 2023 Jan 27; Vol. 18 (1), pp. e0259487. Date of Electronic Publication: 2023 Jan 27 (Print Publication: 2023).Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet

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An Open Label Extension Study of Monepantel in Individuals With Motor Neurone Disease

• Authors : Calvary Health Care Bethlehem; Macquarie University, Australia

• Source: An Open Label Extension Study to Investigate the Long Term Safety, Tolerability And Efficacy of Oral Monepantel in Individuals With Motor

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MiNDAUS partnership: a roadmap for the cure and management of motor Neurone disease.

• Authors : Vucic S; Brain and Nerve Research Center, Concord Clinical School, University of Sydney and Concord Hospital, Sydney, Australia.; Wray N

Subjects: Amyotrophic Lateral Sclerosis* ; Motor Neuron Disease*/Motor Neuron Disease*/Motor Neuron Disease*/therapy; Australia

• Source: Amyotrophic lateral sclerosis & frontotemporal degeneration [Amyotroph Lateral Scler Frontotemporal Degener] 2022 Aug; Vol. 23 (5-6), pp. 321-328. Date of Electronic Publication: Publisher: Taylor & Francis Country of Publication: England NLM ID: 101587185 Publication Model: Print-Electronic Cited Medium: Internet ISSN:

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