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Understanding the incidence of atrial fibrillation and stroke in hypertrophic cardiomyopathy patients:insights from Danish nationwide registries

• Authors : Zörner, Christopher R; Schjerning, Anne-Marie; Jensen, Morten Kvistholm

Subjects: Humans; Atrial Fibrillation/epidemiology; Cardiomyopathy, Hypertrophic/epidemiology

• Source: Zörner , C R , Schjerning , A-M , Jensen , M K , Christensen , A H , Tfelt-Hansen , J , Tønnesen , J , Riis-Vestergaard , L D , Middelfart , C , Rasmussen , P V , Gislason , G & Hansen , M L 2024 ,

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Impact of patient characteristics on ASDAS disease activity state cut-offs in axial spondyloarthritis:results from nine European rheumatology registries

• Authors : Ørnbjerg, Lykke M.; Georgiadis, Stylianos; Kvien, Tore K.

Subjects: Axial Spondyloarthritis; Disease Activity; Epidemiology

• Source: Ørnbjerg , L M , Georgiadis , S , Kvien , T K , Michelsen , B , Rasmussen , S , Pavelka , K , Zavada , J , Loft , A G , Kenar , G , Solmaz , D , Glintborg , B , Rodrigues , A , Santos , M J , Di

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Interstitial Lung Disease in Patients With Rheumatoid Arthritis or Psoriatic Arthritis Initiating Biologics and Controls:Data From 5 Nordic Registries

• Authors : Provan, Sella Aarrestad; Ljung, Lotta; Kristianslund, Eirik Klami

Subjects: interstitial lung disease; methotrexate; psoriatic arthritis

• Source: Provan , S A , Ljung , L , Kristianslund , E K , Michelsen , B , Uhlig , T , Jonmundsson , T , Sexton , J , Gudbjornsson , B , Di Giuseppe , D , Hetland , M L , Reynisdottir , G B , Glintborg , B ,

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Use of cardiovascular registries in regulatory pathways : perspectives from the EU-MDR Cardiovascular Collaboratory

• Authors : Spitzer, Ernest; de la Torre Hernández, José M.; Gudmundsdóttir, Ingibjörg Jóna

Subjects: Regulatory science; Clinical registries; Clinical trials

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Editor's Choice - Vascular Registries Contributing to VASCUNET Collaborative Abdominal Aortic Aneurysm Outcome Projects : A Scoping Review

• Authors : Pouncey, Anna L.; Meuli, Lorenz; Lopez-Espada, Cristina

Subjects: Abdominal aortic aneurysm; Registries; VASCUNET

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Better tools for better estimates: improving approaches to handling missing data in Swiss cancer registries

• Authors : Richter, Cornelia; Wildisen, Lea; Rohrmann, Sabine

Subjects: Epidemiology, Biostatistics and Prevention Institute (EBPI); Institute of Pathology and Molecular Pathology; 610 Medicine & health

• Source: Richter, Cornelia; Wildisen, Lea; Rohrmann, Sabine; Haile, Sarah R (2024). Better tools for better estimates: improving approaches to handling missing data in Swiss cancer

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Framework for Multistakeholder Patient Registries in the Field of Rare Diseases: Focus on Neurogenetic Diseases

• Authors : Schoenmakers, Daphne H; van den Berg, Sibren; Timmers, Lonneke

Subjects: Humans; Nervous System Diseases/therapy; Rare Diseases/therapy

• Source: Neurology vol.103 (2024) date: 2024-09-23 nr.6 [ISSN 0028-3878]

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Data Consistency of Two National Registries in Iran: A Preliminary Assessment to Health Information Exchange.

• Authors : Dashtkoohi, Mohammad; Poursalehian, Mohammad; Azadmanjir, Zahra

Subjects: electronic health records; health information exchange; spinal cord injuries

• Source: Department of Neurosurgery Faculty Papers

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The Clinical Quality Language as a tool to support data analysis in German clinical cancer registries

• Authors : Blohm, K; Korfkamp, D; Hübner, J

Subjects: Clinical Quality Language; CQL; cancer registries

• Source: GMS Medizinische Informatik, Biometrie und Epidemiologie; VOL: 20; DOC11 /20240809/

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Framework for Multistakeholder Patient Registries in the Field of Rare Diseases:Focus on Neurogenetic Diseases

• Authors : Schoenmakers, Daphne H.; Van Den Berg, Sibren; Timmers, Lonneke

Subjects: article

• Source: Schoenmakers , D H , Van Den Berg , S , Timmers , L , Adang , L A , Bäumer , T , Bosch , A , Van De Casteele , M , Datema , M R , Dekker , H , Donnelly , C , Driessens , M H E , Graessner , H ,

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