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Opieka nad dzieckiem z chorobą rzadką i niepełnosprawnością intelektualną a wsparcie rodziny ; Care for a child with rare disease and intellectual disability and family support

• Authors : Kamyk-Wawryszuk, Agnieszka;

Subjects: rodzina dziecka z chorobą rzadką; wsparcie; jakość życia rodziny

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Optimization Models for Faster and Affordable Access to Rare Disease Treatments

• Authors : Olsder, Wendy

• Source: Olsder , W 2023 , ' Optimization Models for Faster and Affordable Access to Rare Disease Treatments ' , Doctor of Philosophy , Industrial

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Advancing genomics for rare disease diagnosis and therapy development vol II

• Authors : Tong, Weida; Shi, Tieliu; Liu, Zhichao

• Source: Frontiers Research Topics ; ISSN 1664-8714 ; ISBN 9782832533239

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International Data Sharing and Rare Disease: The Importance of Ethics and Patient Involvement

• Authors : Thorogood, Adrian

Subjects: Rare Diseases

• Source: https://www.intechopen.com/books/9135.

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Patient involvement in rare disease trial design:Small populations making a big difference

• Authors : Gaasterland, C.M.W.

• Source: Gaasterland , C M W 2019 , ' Patient involvement in rare disease trial design : Small populations making a big difference ' , Doctor of

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Modelling Patient Sequences for Rare Disease Detection with Semi-supervised Generative Adversarial Nets

• Authors : Yu, Kezi; Wang, Yunlong; Cai, Yong

• Source: Lecture Notes in Computer Science ; Advanced Analytics and Learning on Temporal Data ; page 141-150 ; ISSN 0302-9743 1611-3349 ; ISBN 9783030390976 9783030390983

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Innovative Methods for Rare Disease Drug Development

• Authors : Chow, Shein-Chung

• Source: ISBN 9781003049364.

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Bayesian Frameworks for Rare Disease Clinical Development Programs

• Authors : Cooner, Freda; Williamson, Forrest; Carlin, Bradley P.

• Source: Bayesian Methods in Pharmaceutical Research ; page 243-257 ; ISBN 9781315180212

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Advancing Genomics for Rare Disease Diagnosis and Therapy Development

• Authors : Liu, Zhichao; Tong, Weida; Shi, Tieliu

• Source: Frontiers Research Topics ; ISSN 1664-8714 ; ISBN 9782889661626

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Atlas de Mortalidad debida a Enfermedades Raras en España ; Rare Disease Mortality Atlas of Spain

• Authors : Alonso Ferreira, Verónica; Escobar Martínez, Francisco Javier; Sánchez Díaz, Germán ...

Subjects: Epidemiología; Atlas; Enfermedades raras

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