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Not being heard: barriers to high quality unplanned hospital care during young people's transition to adult services - evidence from 'this sickle cell life' research

• Authors : Renedo, A; Miles, S; Chakravorty, S

Subjects: Adolescents; Chronic illness; Community involvementEngland

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Sickle cell disease: embedding patient participation into an international conference can transform the role of lived experience.

• Authors : Pellegrini M; European Reference Network on Rare Hematological Disease, the ERN-EuroBloodNets, Hôpitaux de Paris, Hôpital Saint Louis, Paris, France. .; Chakravorty S

Subjects: Patient Participation* ; Anemia, Sickle Cell*; Humans

• Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2023 Nov 01; Vol. 18 (1), pp. 341. Date of Electronic Publication: 2023 Nov 01.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium:

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Haemophagocytic Lymphohistiocytosis responding to withdrawal of gluten: a case report

• Authors : Fordham, NJ; Ajitsaria, R; Karnik, L

Subjects: General & Internal Medicine; 1199 Other Medical And Health Sciences

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Study of montelukast in children with sickle cell disease (SMILES): a study protocol for a randomised controlled trial.

• Authors : Hood AM; Developmental Neurosciences Unit and Biomedical Research Centre, UCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, WC1N 1EH, UK. .; Stotesbury H

Subjects: Anemia, Sickle Cell*/Anemia, Sickle Cell*/Anemia, Sickle Cell*/diagnosis ; Anemia, Sickle Cell*/Anemia, Sickle Cell*/Anemia, Sickle Cell*/drug therapy ; Quinolines*/Quinolines*/Quinolines*/adverse effects

• Source: Trials [Trials] 2021 Oct 10; Vol. 22 (1), pp. 690. Date of Electronic Publication: 2021 Oct 10.Publisher: BioMed Central Country of Publication: England NLM ID: 101263253 Publication Model: Electronic Cited Medium:

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Online cognitive behavioral therapy for insomnia (CBT-I) for the treatment of insomnia among individuals with alcohol use disorder: study protocol for a randomized controlled trial.

• Authors : Brooks AT; 1National Institutes of Health Clinical Center, Bethesda, USA.; Tuason RT

• Source: Pilot and feasibility studies [Pilot Feasibility Stud] 2018 Dec 10; Vol. 4, pp. 183. Date of Electronic Publication: 2018 Dec 10 (Print Publication: 2018).Publisher: BioMed Central Country of Publication: England NLM ID: 101676536 Publication Model: eCollection Cited Medium:

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Overnight auto-adjusting continuous airway pressure + standard care compared with standard care alone in the prevention of morbidity in sickle cell disease phase II (POMS2b): study protocol for a randomised controlled trial.

• Authors : Howard J; Department of Haematology, Guy's and St Thomas' Hospitals NHS Foundation Trust, London, UK.; Slee AE

Subjects: Anemia, Sickle Cell/Anemia, Sickle Cell/Anemia, Sickle Cell/*therapy ; Brain/Brain/Brain/*physiopathology ; Continuous Positive Airway Pressure/Continuous Positive Airway Pressure/Continuous Positive Airway Pressure/*methods

• Source: Trials [Trials] 2018 Jan 22; Vol. 19 (1), pp. 55. Date of Electronic Publication: 2018 Jan 22.Publisher: BioMed Central Country of Publication: England NLM ID: 101263253 Publication Model: Electronic Cited Medium:

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Disruption of AP3B1 by a chromosome 5 inversion: a new disease mechanism in Hermansky-Pudlak syndrome type 2.

• Authors : Jones ML; 1Bristol Heart Institute & School of Cellular and Molecular Medicine,University of Bristol, Bristol, UK.; Murden SL

Subjects: Adaptor Protein Complex 3/Adaptor Protein Complex 3/Adaptor Protein Complex 3/*genetics ; Adaptor Protein Complex beta Subunits/Adaptor Protein Complex beta Subunits/Adaptor Protein Complex beta Subunits/*genetics ; Chromosomes, Human, Pair 5/Chromosomes, Human, Pair 5/Chromosomes, Human, Pair 5/*genetics Hermansky Pudlak syndrome 2

• Source: BMC medical genetics [BMC Med Genet] 2013 Apr 04; Vol. 14, pp. 42. Date of Electronic Publication: 2013 Apr 04.Publisher: BioMed Central Country of Publication: England NLM ID: 100968552 Publication Model: Electronic Cited Medium:

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Lysis of tubercle bacilli in fresh and stored sputum specimens: implications for diagnosing tuberculosis in stored and paucibacillary specimens by PCR.

• Authors : Pathak D; Department of Biotechnology, All India Institute of Medical Sciences, Ansari Nagar, New Delhi 110029, India. ; Chakravorty S

Subjects: Bacteriolysis* ; Specimen Handling*; DNA, Bacterial/DNA, Bacterial/DNA, Bacterial/*genetics

• Source: BMC microbiology [BMC Microbiol] 2007 Sep 04; Vol. 7, pp. 83. Date of Electronic Publication: 2007 Sep 04.Publisher: BioMed Central Country of Publication: England NLM ID: 100966981 Publication Model: Electronic Cited Medium:

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