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An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model

• Authors : Treadwell, Marsha J; Mushiana, Swapandeep; Badawy, Sherif M

Subjects: Health Sciences; Mind and Body; Mental Health

• Source: Quality of Life Research. 31(9)

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Is Treatment Adherence Associated with Better Quality of Life in Children with Sickle Cell Disease?

• Authors : Ohene-Frempong, Kwaku

• Source: Quality of Life Research, 2005 Mar 01. 14(2), 407-414.

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Caught between pity, explicit bias, and discrimination: a qualitative study on the impact of stigma on the quality of life of persons living with sickle cell disease in three African countries.

• Authors : Munung, Nchangwi Syntia¹ (AUTHOR) ; Treadwell, Marsha² (AUTHOR); Kamga, Karen Kengne^1,3 (AUTHOR)

• Source: Quality of Life Research. Feb2024, Vol. 33 Issue 2, p423-432. 10p.

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The relationship between frequency and severity of vaso-occlusive crises and health-related quality of life and work productivity in adults with sickle cell disease

• Authors : Rizio, Avery A.; Bhor, Menaka; Lin, Xiaochen

• Source: Quality of Life Research, 2020 Jun 01. 29(6), 1533-1547.

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Impact of Family Income and Sickle Cell Disease on the Health-Related Quality of Life of Children

• Authors : Panepinto, Julie A.; Pajewski, Nicholas M.; Foerster, Lisa M.

• Source: Quality of Life Research, 2009 Feb 01. 18(1), 5-13.

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Development of the PedsQL™ sickle cell disease module items: qualitative methods

• Authors : Panepinto, Julie A.; Torres, Sylvia; Varni, James W.

• Source: Quality of Life Research, 2012 Mar 01. 21(2), 341-357.

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Application of validated mapping algorithms between generic PedsQL scores and utility values to individuals with sickle cell disease.

• Authors : Jiao, Boshen¹ (AUTHOR); Hankins, Jane S.² (AUTHOR); Devine, Beth^1,3 (AUTHOR)

• Source: Quality of Life Research. Sep2022, Vol. 31 Issue 9, p2729-2738. 10p. 1 Diagram, 3 Charts, 2 Graphs.

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Assessing responsiveness over time of the PROMIS® pediatric symptom and function measures in cancer, nephrotic syndrome, and sickle cell disease

• Authors : Reeve, Bryce B.; Edwards, Lloyd J.; Jaeger, Byron C.

• Source: Quality of Life Research, 2018 Jan 01. 27(1), 249-257.

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The relationship between frequency and severity of vaso-occlusive crises and health-related quality of life and work productivity in adults with sickle cell disease

• Authors : Savita Nandal; Xiaochen Lin; Jincy Paulose

Subjects: Adult; Male; Work productivity

• Source: Quality of Life Research

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Is treatment adherence associated with better quality of life in children with sickle cell disease?

• Authors : Barakat, Lamia P.¹ ; Lutz, Meredith¹; Smith-Whitley, Kim²

• Source: Quality of Life Research. Mar2005, Vol. 14 Issue 2, p407-414. 8p.

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