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Sickle cell disease: embedding patient participation into an international conference can transform the role of lived experience.

• Authors : Pellegrini M; European Reference Network on Rare Hematological Disease, the ERN-EuroBloodNets, Hôpitaux de Paris, Hôpital Saint Louis, Paris, France. .; Chakravorty S

Subjects: Patient Participation* ; Anemia, Sickle Cell*; Humans

• Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2023 Nov 01; Vol. 18 (1), pp. 341. Date of Electronic Publication: 2023 Nov 01.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172

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