نتائج البحث

Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry's Research Notification Mechanism.

• Authors : Mehta P; Agency for Toxic Substances and Disease Registry, Centers for Disease Control and Prevention, Atlanta, GA, United States.; Raymond J

Subjects: Amyotrophic Lateral Sclerosis*/Amyotrophic Lateral Sclerosis*/Amyotrophic Lateral Sclerosis*/epidemiology ; Amyotrophic Lateral Sclerosis*/Amyotrophic Lateral Sclerosis*/Amyotrophic Lateral Sclerosis*/therapy; Adolescent

• Source: Journal of medical Internet research [J Med Internet Res] 2021 Dec 07; Vol. 23 (12), pp. e28021. Date of Electronic Publication: 2021 Dec 07.Publisher: JMIR Publications Country of Publication: Canada NLM ID: 100959882 Publication Model: Electronic Cited Medium: Internet ISSN:

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Sharing and Empathy in Digital Spaces: Qualitative Study of Online Health Forums for Breast Cancer and Motor Neuron Disease (Amyotrophic Lateral Sclerosis).

• Authors : Hargreaves S; Health Informatics Research Group, Information School, University of Sheffield, Sheffield, United Kingdom.; Bath PA

Subjects: Qualitative Research*; Amyotrophic Lateral Sclerosis/Amyotrophic Lateral Sclerosis/Amyotrophic Lateral Sclerosis/*diagnosis ; Breast Neoplasms/Breast Neoplasms/Breast Neoplasms/*diagnosis

• Source: Journal of medical Internet research [J Med Internet Res] 2018 Jun 14; Vol. 20 (6), pp. e222. Date of Electronic Publication: 2018 Jun 14.Publisher: JMIR Publications Country of Publication: Canada NLM ID: 100959882 Publication Model: Electronic Cited Medium: Internet ISSN:

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Scaling PatientsLikeMe via a "Generalized Platform" for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising.

• Authors : Wicks, Paul¹ ; Thorley, Eileen Mack¹; Simacek, Kristina¹

• Source: Journal of Medical Internet Research. May2018, Vol. 20 Issue 5, p1-14. 14p. 1 Color Photograph, 1 Diagram, 6 Charts.

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Severe Loss of Appetite in Amyotrophic Lateral Sclerosis Patients Online Self-Assessment Study.

• Authors : Holm1, Teresa¹; Maier1, André¹; Wicks2, Paul²

• Source: Journal of Medical Internet Research. Apr2013, Vol. 15 Issue 4, p1-1. 1p. 5 Color Photographs.

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Mining Online Social Network Data for Biomedical Research: A Comparison of Clinicians' and Patients' Perceptions About Amyotrophic Lateral Sclerosis Treatments.

• Authors : Nakamura, Carlos¹ ; Bromberg, Mark²; Bhargava, Shivani³

• Source: Journal of Medical Internet Research. May/Jun2012, Vol. 14 Issue 3, p33-33. 1p. 1 Diagram, 3 Graphs.

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Development of a Smartphone App for a Genetics Website: The Amyotrophic Lateral Sclerosis Online Genetics Database (ALSoD).

• Authors : Abel, Olubunmi¹; Shatunov, Aleksey¹; Jones, Ashley R¹

• Source: Journal of Medical Internet Research. Sep2013, Vol. 15 Issue 9, p1-1. 1p. 2 Charts.

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Factors Contributing to Adolescents’ and Young Adults’ Participation in Web-Based Challenges: Survey Study.

• Authors : Khasawneh, Amro¹ (AUTHOR); Madathil, Kapil Chalil² (AUTHOR); Zinzow, Heidi³ (AUTHOR)

• Source: Journal of Medical Internet Research. Feb2021, Vol. 23 Issue 2, pN.PAG-N.PAG. 1p. 5 Charts.

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Patient-reported outcomes as a source of evidence in off-label prescribing: analysis of data from PatientsLikeMe.

• Authors : Frost J; VU Amsterdam, KankerNL, Amsterdam, Netherlands. ; Okun S

Subjects: Off-Label Use* ; Patients* ; Self Report*

• Source: Journal of medical Internet research [J Med Internet Res] 2011 Jan 21; Vol. 13 (1), pp. e6. Date of Electronic Publication: 2011 Jan 21.Publisher: JMIR Publications Country of Publication: Canada NLM ID: 100959882 Publication Model: Electronic Cited Medium: Internet ISSN:

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A Road Map for Remote Digital Health Technology for Motor Neuron Disease.

• Authors : Eijk, Ruben P A van^1,2 (AUTHOR); Beelen, Anita^3,4 (AUTHOR); Kruitwagen, Esther T^3,4 (AUTHOR)

• Source: Journal of Medical Internet Research. Sep2021, Vol. 23 Issue 9, pN.PAG-N.PAG. 1p. 3 Charts, 1 Map.

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Sharing Health Data for Better Outcomes on PatientsLikeMe.

• Authors : Wicks, Paul¹ ; Massagli, Michael¹; Frost, Jeana¹

• Source: Journal of Medical Internet Research. Apr2010, Vol. 12 Issue 2, p10-10. 1p. 5 Charts.

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