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Academic Journal

Appropriateness of the EQ-5D-5L in capturing health-related quality of life in individuals with transfusion-dependent β-thalassemia: a mixed methods study.

  • Authors : Boateng-Kuffour A; Vertex Pharmaceuticals, Boston, MA, USA. .; Health Economics and Outcomes Research, Vertex Pharmaceuticals Incorporated, 50 Northern Avenue, Boston, MA, 02210, USA. .

Subjects: Quality of Life*/Quality of Life*/Quality of Life*/psychology ; beta-Thalassemia*/beta-Thalassemia*/beta-Thalassemia*/psychology ; beta-Thalassemia*/beta-Thalassemia*/beta-Thalassemia*/therapy

  • Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2024 Jul 11; Vol. 22 (1), pp. 54. Date of Electronic Publication: 2024 Jul 11.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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Academic Journal

Clinical assessment of the physical activity pattern of chronic fatigue syndrome patients: a validation of three methods.

  • Authors : Scheeres K; Expert Centre Chronic Fatigue, Radboud University Nijmegen Medical Centre (4628), PO Box 9101, 6500 HB Nijmegen, The Netherlands. ; Knoop H

Subjects: Fatigue Syndrome, Chronic*/Fatigue Syndrome, Chronic*/Fatigue Syndrome, Chronic*/physiopathology ; Interviews as Topic* ; Motor Activity*

  • Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2009 Apr 01; Vol. 7, pp. 29. Date of Electronic Publication: 2009 Apr 01.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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Academic Journal

Beyond satisfaction: using the Dynamics of Care assessment to better understand patients' experiences in care.

  • Authors : Rapkin B; Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, New York, USA. ; Weiss E

Subjects: Interviews as Topic* ; Patient Satisfaction* ; State Health Plans*

  • Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2008 Mar 10; Vol. 6, pp. 20. Date of Electronic Publication: 2008 Mar 10.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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Academic Journal

Development of the Pulmonary Hypertension Functional Classification Self-Report: a patient version adapted from the World Health Organization Functional Classification measure.

Subjects: Quality of Life*; Hypertension, Pulmonary/Hypertension, Pulmonary/Hypertension, Pulmonary/*classification; Humans

  • Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2021 Aug 24; Vol. 19 (1), pp. 202. Date of Electronic Publication: 2021 Aug 24.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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Academic Journal

Mothers' quality of life delivering kangaroo mother care at Malawian hospitals: a qualitative study.

  • Authors : Nyondo-Mipando AL; Department of Health Systems and Policy, School of Public Health and Family Medicine, College of Medicine, University of Malawi, Blantyre, Malawi. .; Kinshella MW

Subjects: Kangaroo-Mother Care Method/Kangaroo-Mother Care Method/Kangaroo-Mother Care Method/*psychology ; Mothers/Mothers/Mothers/*psychology ; Quality of Life/Quality of Life/Quality of Life/*psychology

  • Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2021 Jul 28; Vol. 19 (1), pp. 186. Date of Electronic Publication: 2021 Jul 28.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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Academic Journal

Same same-but different: using qualitative studies to inform concept elicitation for quality of life assessment in telemedical care: a request for an extended working model.

  • Authors : Greffin K; Department of Psychology, Chair of Health and Prevention, University of Greifswald, Robert-Blum-Str. 13, 17489, Greifswald, Germany. .; Schmidt S

Subjects: Chronic Disease* ; Quality of Life* ; Telemedicine*

  • Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2021 Jul 05; Vol. 19 (1), pp. 175. Date of Electronic Publication: 2021 Jul 05.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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Academic Journal

Qualitative evaluation of the Autism Behavior Inventory: use of cognitive interviewing to establish validity of a caregiver report scale for autism spectrum disorder.

  • Authors : Pandina G; Department of Neuroscience, Janssen Research & Development, LLC, Pennington, NJ, 08534, USA. .; Ness S

Subjects: Comprehension* ; Evaluation Studies as Topic*; Autism Spectrum Disorder/Autism Spectrum Disorder/Autism Spectrum Disorder/*diagnosis

  • Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2021 Jan 20; Vol. 19 (1), pp. 26. Date of Electronic Publication: 2021 Jan 20.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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Academic Journal

Influence of schooling on the health-related quality of life of children with rare diseases.

  • Authors : Paz-Lourido B; Department of Nursing and Physiotherapy, University of the Balearic Islands, Edif. Beatriu de Pinós, Cra. de Valldemossa Km 7.5, 07122, Palma, Balearic Islands, Spain. .; Childhood, Technology, Education and Diversity Research Group, Institute of Research and Innovation in Education, Palma, Balearic Islands, Spain. .

Subjects: Education* ; Quality of Life* ; Rare Diseases*

  • Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2020 Apr 28; Vol. 18 (1), pp. 109. Date of Electronic Publication: 2020 Apr 28.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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