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Post-authorisation safety study of burosumab use in paediatric, adolescent and adult patients with X-Linked hypophosphataemia:rationale and description

• Authors : Brandi, Maria Luisa; Ariceta, Gema; Beck-Nielsen, Signe Sparre

Subjects: burosumab; patient registry; phosphate

• Source: Brandi , M L , Ariceta , G , Beck-Nielsen , S S , Boot , A M , Briot , K , de Lucas Collantes , C , Emma , F , Giannini , S , Haffner , D , Keen , R , Levtchenko , E , Makitie , O , Nilsson , O ,

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Clinical presentation, disease course, and outcome of COVID-19 in hospitalized patients with and without pre-existing cardiac disease:a cohort study across 18 countries

Subjects: COVID-19; SARS-CoV-2; Epidemiology

• Source: CAPACITY-COVID Collaborative Conso & LEOSS Study Grp 2022 , ' Clinical presentation, disease course, and outcome of COVID-19 in hospitalized patients with and without pre-existing cardiac disease : a

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Electrocardiographic features and their echocardiographic correlates in peripartum cardiomyopathy:results from the ESC EORP PPCM registry

• Authors : Mbakwem, Amam C.; Bauersachs, Johann; Viljoen, Charle

Subjects: Peripartum cardiomyopathy; Electrocardiography; Echocardiography

• Source: Peripartum Cardiomyopathy Investig , Mbakwem , A C , Bauersachs , J , Viljoen , C , Hoevelmann , J , van der Meer , P , Petrie , M C , Mebazaa , A , Goland , S , Karaye , K , Laroche , C & Sliwa , K

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Design and rationale of DISCOVER global registry in type 2 diabetes:Real-world insights of treatment patterns and its relationship with cardiovascular, renal, and metabolic multimorbidities

• Authors : Khunti, Kamlesh; Heerspink, Hiddo J. L.; Lam, Carolyn S. P.

Subjects: Type 2 diabetes mellitus; Diabetes global registry; micro and macrovascular complications

• Source: Khunti , K , Heerspink , H J L , Lam , C S P , Nicolucci , A , Ramirez , L , Surmont , F , Fenici , P & Kosiborod , M 2021 , ' Design and rationale of DISCOVER global

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EUROlinkCAT protocol for a European population-based data linkage study investigating the survival, morbidity and education of children with congenital anomalies

• Authors : Morris, Joan K.; Garne, Ester; Loane, Maria

Subjects: paediatrics; statistics & research methods; epidemiology

• Source: EUROIinkCAT Consortium , Morris , J K , Garne , E , Loane , M , Barisic , I , Densem , J , Latos-Bielenska , A , Neville , A , Pierini , A , Rankin , J , Rissmann , A , de Walle , H , Tan , J , Given

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A multi-country study of prevalence and early childhood mortality among children with omphalocele

• Authors : Nembhard, Wendy N.; Bergman, Jorieke E. H.; Politis, Maria D.

Subjects: mortality; omphalocele; prevalence

• Source: Nembhard , W N , Bergman , J E H , Politis , M D , Arteaga-Vazquez , J , Bermejo-Sanchez , E , Canfield , M A , Cragan , J D , Dastgiri , S , de Walle , H E K , Feldkamp , M L , Nance , A , Gatt , M ,

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Rationale and design of the AFFIRM-AHF trial:a randomised, double-blind, placebo-controlled trial comparing the effect of intravenous ferric carboxymaltose on hospitalisations and mortality in iron-deficient patients admitted for acute heart failure

• Authors : Ponikowski, Piotr; Kirwan, Bridget-Anne; Anker, Stefan D.

Subjects: Acute heart failure; Iron deficiency; Ferric carboxymaltose

• Source: Ponikowski , P , Kirwan , B-A , Anker , S D , Dorobantu , M , Drozdz , J , Fabien , V , Filippatos , G , Haboubi , T , Keren , A , Khintibidze , I , Kragten , H , Martinez , F A , McDonagh , T , Metra

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Association of Diabetes Mellitus on Cardiac Remodeling, Quality of Life, and Clinical Outcomes in Heart Failure With Reduced and Preserved Ejection Fraction

• Authors : Yap, Jonathan; Tay, Wan Ting; Teng, Tiew-Hwa Katherine

Subjects: diabetes mellitus; diabetic cardiomyopathy; echocardiography

• Source: ASIAN-HF Asian Sudden Cardiac Deat , Yap , J , Tay , W T , Teng , T-H K , Anand , I , Richards , A M , Ling , L H , MacDonald , M R , Chandramouli , C , Tromp , J & Siswanto , B B 2019 , ' Association

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European ADPKD Forum multidisciplinary position statement on autosomal dominant polycystic kidney disease care:European ADPKD Forum and Multispecialist Roundtable participants

• Authors : Harris, Tess; Sandford, Richard; de Coninck, Brenda

Subjects: Journal Article; PREVALENCE; MANAGEMENT

• Source: Harris , T , Sandford , R , de Coninck , B , Devuyst , O , Drenth , J P H , Ecder , T , Kent , A , Gansevoort , R T , Górriz , J L , Ong , A C M , Pirson , Y , Torres , V E , Budde , K , Clément , D

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KinCor, a national registry for paediatric patients with congenital and other types of heart disease in the Netherlands:aims, design and interim results

• Authors : Silva, L. M.; Kuipers, I. M.; van den Heuvel, F.

Subjects: Registry; Database; Child

• Source: Silva , L M , Kuipers , I M , van den Heuvel , F , Mendes , R , Berger , R M F , van Beynum , I M , Rozendaal , L , Rammeloo , L A J , van Iperen , G G , Schokking , M , Frerich , S , Blom , N A ,

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