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The European Cystic Fibrosis Society Patient Registry:valuable lessons learned on how to sustain a disease registry

• Authors : Viviani, Laura; Zolin, Anna; Mehta, Anil

• Source: Viviani , L , Zolin , A , Mehta , A & Olesen , H V 2014 , ' The European Cystic Fibrosis Society Patient Registry : valuable lessons

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The Registry Data Warehouse in the European Reference Network for Rare Respiratory Diseases - Background, Conception and Implementation

• Authors : Schaaf, Jannik; Chalmers, James; Omran, Heymut ...

Subjects: Data Warehousing; Europe/epidemiology; Humans

• Source: Schaaf , J , Chalmers , J , Omran , H , Pennekamp , P , Sitbon , O , Wagner , T O F , Reis , A , Kadioglu , D & Storf , H 2021 , The Registry Data Warehouse in the

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Creating longitudinal datasets and cleaning existing data identifiers in a cystic fibrosis registry using a novel Bayesian probabilistic approach from astronomy

• Authors : Hurley, Peter Donald; Oliver, Seb; Mehta, Anil

Subjects: Bayes Theorem; Cystic Fibrosis/epidemiology; Data Accuracy

• Source: Hurley , P D , Oliver , S & Mehta , A 2018 , ' Creating longitudinal datasets and cleaning existing data identifiers in a cystic fibrosis registry using a novel Bayesian

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Airway clearance treatments in bronchiectasis:feasibility of linking survey results to registry data and a survey of patients' and physiotherapists' practices

• Authors : McLeese, Rebecca H.; O'Neill, Katherine; O'Neill, Brenda

• Source: McLeese , R H , O'Neill , K , O'Neill , B , Chalmers , J D , Boyd , J , De Soyza , A , McChrystal , R , Crichton , M L & Bradley , J M 2023 , ' Airway clearance treatments in bronchiectasis :

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