Care for the family member after a stroke ; Cuidado ao familiar após acidente vascular encefálico

Objective: to understand the experience of family members in home care after hospital discharge from a family member affected by stroke. Method: qualitative, descriptive, convergent type study with four families. The study scenario was the household, with an average of 16 visits per family, once a week or when there was a need for assistance. For the analysis of the data, the technique of Content Analysis was used in the Thematic Analysis modality. Results: It was evidenced that the experience of caring at home led family members to deal with feelings such as fear, sadness, anguish and frailty, and the sick members reported anxiety, discouragement, frustration and revolt at being sick. Conclusion: the study allowed the understanding of the home care experience and the family life of the family members affected by stroke, allowing care practice and research to occur at the same time and, thus, provided the opportunity for interaction and bonding with study participants and the understanding of the experience and the repercussion of care at home among the family members. Descritores: Cerebrovascular Accident; Family; Home Care; Nursing Care; Nursing; Chronic Disease.RESUMOObjetivo: compreender a vivência dos familiares no cuidado domiciliar após a alta hospitalar de um familiar acometido por Acidente Vascular Encefálico. Método: estudo qualitativo, descritivo, do tipo convergente assistencial, com quatro famílias. O cenário do estudo foi o domicílio, com média de 16 visitas por família, uma vez por semana ou quando houvesse necessidade de assistência. Para a análise dos dados, utilizou-se a técnica de Análise de Conteúdo, na modalidade Análise Temática. Resultados: evidenciou-se que a experiência de cuidar no domicílio levou os membros da família a lidarem com sentimentos como o medo, a tristeza, a angústia e a fragilidade e os membros adoecidos relataram ansiedade, desânimo, frustração e revolta por estarem adoecidos. Conclusão: o estudo permitiu a compreensão da experiência de cuidar no domicílio e a ...