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Social determinants of health and treatment center affiliation: analysis from the sickle cell disease implementation consortium registry.

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  • معلومة اضافية
    • Corporate Authors:
      Sickle Cell Disease Implementation Consortium
    • المصدر:
      Publisher: BioMed Central Country of Publication: England NLM ID: 101088677 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-6963 (Electronic) Linking ISSN: 14726963 NLM ISO Abbreviation: BMC Health Serv Res Subsets: MEDLINE
    • بيانات النشر:
      Original Publication: London : BioMed Central, [2001-
    • الموضوع:
      Social Determinants of Health* ; Anemia, Sickle Cell*/epidemiology ; Anemia, Sickle Cell*/therapy; Adult ; Humans ; Cross-Sectional Studies ; Emotions ; Registries
    • نبذة مختصرة :
      Background: Adults with sickle cell disease (SCD) suffer early mortality and high morbidity. Many are not affiliated with SCD centers, defined as no ambulatory visit with a SCD specialist in 2 years. Negative social determinants of health (SDOH) can impair access to care.
      Hypothesis: Negative SDOH are more likely to be experienced by unaffiliated adults than adults who regularly receive expert SCD care.
      Methods: Cross-sectional analysis of the SCD Implementation Consortium (SCDIC) Registry, a convenience sample at 8 academic SCD centers in 2017-2019. A Distressed Communities Index (DCI) score was assigned to each registry member's zip code. Insurance status and other barriers to care were self-reported. Most patients were enrolled in the clinic or hospital setting.
      Results: The SCDIC Registry enrolled 288 Unaffiliated and 2110 Affiliated SCD patients, ages 15-45y. The highest DCI quintile accounted for 39% of both Unaffiliated and Affiliated patients. Lack of health insurance was reported by 19% of Unaffiliated versus 7% of Affiliated patients. The most frequently selected barriers to care for both groups were "previous bad experience with the healthcare system" (40%) and "Worry about Cost" (17%). SCD co-morbidities had no straightforward trend of association with Unaffiliated status. The 8 sites' results varied.
      Conclusion: The DCI economic measure of SDOH was not associated with Unaffiliated status of patients recruited in the health care delivery setting. SCDIC Registrants reside in more distressed communities than other Americans. Other SDOH themes of affordability and negative experiences might contribute to Unaffiliated status. Recruiting Unaffiliated SCD patients to care might benefit from systems adopting value-based patient-centered solutions.
      (© 2024. The Author(s).)
    • References:
      Prev Med. 1994 Mar;23(2):142-51. (PMID: 8047519)
      Pediatr Blood Cancer. 2020 Jan;67(1):e28006. (PMID: 31571379)
      J Pediatr Hematol Oncol. 2015 May;37(4):269-73. (PMID: 25265467)
      Pediatr Blood Cancer. 2021 Apr;68(4):e28877. (PMID: 33405365)
      EJHaem. 2023 Feb 17;4(2):432-436. (PMID: 37206276)
      Pediatr Blood Cancer. 2023 Feb;70(2):e30089. (PMID: 36495544)
      Pediatrics. 2016 Mar;137(3):e20153673. (PMID: 26933205)
      Pediatrics. 2015 Feb;135(2):e296-304. (PMID: 25560448)
      Int J Health Serv. 2006;36(4):651-77. (PMID: 17175840)
      JAMA. 2014 Sep 10;312(10):1033-48. (PMID: 25203083)
      J Natl Med Assoc. 2013 Summer;105(2):157-65. (PMID: 24079216)
      Top Antivir Med. 2018 Jun;26(2):62-65. (PMID: 29906790)
      Blood Adv. 2020 Jul 28;4(14):3311-3314. (PMID: 32706890)
      Value Health. 2021 Aug;24(8):1095-1101. (PMID: 34372974)
      BMJ Open. 2021 Nov 17;11(11):e050880. (PMID: 34789492)
      Am J Public Health. 2019 Jan;109(S1):S16-S20. (PMID: 30699025)
      Int J Epidemiol. 2001 Aug;30(4):668-77. (PMID: 11511581)
      J Acquir Immune Defic Syndr. 2013 Nov 1;64 Suppl 1:S20-6. (PMID: 24126445)
      Soc Sci Med. 2021 May;277:113876. (PMID: 33866085)
      J Natl Med Assoc. 2010 Nov;102(11):993-9. (PMID: 21141286)
      J Exp Soc Psychol. 2010 Mar 1;46(2):436-440. (PMID: 20228874)
      J Gen Intern Med. 2003 May;18(5):319-25. (PMID: 12795729)
      N C Med J. 2018 Jul-Aug;79(4):210-217. (PMID: 29991608)
      BMC Health Serv Res. 2022 Jan 26;22(1):109. (PMID: 35078462)
      Prof Case Manag. 2018 Jul/Aug;23(4):213-219. (PMID: 29846351)
      Am J Hematol. 2011 Oct;86(10):863-5. (PMID: 21815184)
      J Chronic Dis. 1985;38(6):495-505. (PMID: 4008590)
      PLoS One. 2022 Mar 23;17(3):e0265342. (PMID: 35320302)
      Pediatr Blood Cancer. 2012 Mar;58(3):406-9. (PMID: 21495162)
      Pediatrics. 2009 Jan;123(1):407-12. (PMID: 19117908)
      Glob Pediatr Health. 2019 May 03;6:2333794X19847026. (PMID: 31106244)
      Am J Hematol. 2018 Dec;93(12):E391-E395. (PMID: 30203558)
      Pediatr Blood Cancer. 2020 Dec;67(12):e28703. (PMID: 32939942)
      Am J Emerg Med. 2013 Apr;31(4):651-6. (PMID: 23380119)
      Clin J Pain. 2010 Mar-Apr;26(3):199-205. (PMID: 20173433)
      Orphanet J Rare Dis. 2020 Jul 7;15(1):178. (PMID: 32635939)
      Prof Case Manag. 2022 Jan-Feb 01;27(1):12-18. (PMID: 34846319)
      Health Promot Perspect. 2011 Dec 20;1(2):86-94. (PMID: 24688904)
      Am J Hematol. 2023 Mar;98(3):440-448. (PMID: 36594168)
      Paediatr Respir Rev. 2014 Mar;15(1):4-12. (PMID: 24361300)
      PLoS One. 2022 Nov 11;17(11):e0272204. (PMID: 36367870)
      J Health Care Poor Underserved. 2010 Nov;21(4):1124-37. (PMID: 21099066)
      Int J Gen Med. 2020 Jul 07;13:361-377. (PMID: 32753936)
      J Public Health (Oxf). 2013 Dec;35(4):510-7. (PMID: 24169414)
      J Nerv Ment Dis. 2017 Feb;205(2):161-170. (PMID: 27668352)
      Pediatr Blood Cancer. 2020 Oct;67(10):e28587. (PMID: 32716125)
      J Pediatr Hematol Oncol. 2020 Jan;42(1):e42-e45. (PMID: 31743315)
      J Behav Med. 2023 Apr;46(1-2):153-166. (PMID: 35066696)
      Int J Equity Health. 2013 Mar 11;12:18. (PMID: 23496984)
      Acad Pediatr. 2016 Apr;16(3 Suppl):S136-46. (PMID: 27044692)
      Blood Adv. 2023 Feb 14;7(3):365-374. (PMID: 35575558)
      Public Health Rep. 2013 Mar-Apr;128(2):110-6. (PMID: 23450875)
      Blood Rev. 2013 Nov;27(6):279-87. (PMID: 24094945)
      Pain Manag Nurs. 2015 Jun;16(3):294-306. (PMID: 25439119)
      J Health Care Poor Underserved. 2010 Nov;21(4):1114-23. (PMID: 21099065)
      Pediatr Blood Cancer. 2017 Nov;64(11):. (PMID: 28556441)
      Eur J Pediatr. 2015 Jul;174(7):847-54. (PMID: 25957970)
      AIDS Behav. 2019 Jan;23(Suppl 1):105-114. (PMID: 29492740)
      J Manag Care Spec Pharm. 2020 Sep;26(9):1121-1129. (PMID: 32597290)
      Public Health Rep. 2018 Nov/Dec;133(2_suppl):43S-51S. (PMID: 30457951)
      JAMA Netw Open. 2020 May 1;3(5):e206016. (PMID: 32469413)
      Pediatr Blood Cancer. 2020 May;67(5):e28152. (PMID: 32147964)
      Hematology. 2018 Oct;23(9):683-691. (PMID: 29595096)
      J Natl Cancer Inst Monogr. 2012 May;2012(44):2-10. (PMID: 22623590)
      Pediatr Blood Cancer. 2013 May;60(5):828-35. (PMID: 23335275)
      Int J Qual Stud Health Well-being. 2018 Dec;13(1):1479582. (PMID: 29912650)
      JMIR Res Protoc. 2020 Jul 14;9(7):e16319. (PMID: 32442144)
      JAAPA. 2020 Mar;33(3):51-53. (PMID: 32097217)
      BMC Pediatr. 2018 Sep 4;18(1):293. (PMID: 30180831)
      JAAPA. 2020 Jan;33(1):51-53. (PMID: 31880652)
    • Grant Information:
      3U01HL134042-04S2 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; 5U01HL134042-S2 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS; U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042 United States GF NIH HHS
    • Contributed Indexing:
      Keywords: Distressed communities Index; Linkage to care; SCD center affiliation; Sickle cell disease; Social determinants of health
    • الموضوع:
      Date Created: 20240306 Date Completed: 20240308 Latest Revision: 20240309
    • الموضوع:
      20240309
    • الرقم المعرف:
      PMC10916176
    • الرقم المعرف:
      10.1186/s12913-024-10717-6
    • الرقم المعرف:
      38448911