Symptoms experienced in the last six months of life in patients with end-stage heart failure

Mälardalens högskola, Institutionen för vård- och folkhälsovetenskap Central Hospital, Västerås, Sweden 2003

BACKGROUND: Despite today's modern therapy, the advancement of chronic heart failure (CHF) has not been curbed (Dying from heart failure: lessons from palliative care, BMJ, 317, 1998, 961-962, Editorial). Consequently, the suffering in patients with end-stage CHF is still present. The knowledge on the frequency of symptoms in these patients is scarce. AIMS: The aim of this study was to achieve a deeper understanding of patients with end-stage CHF and to describe symptoms in these patients during the last 6 months of life by examining documentation in medical records. METHODS: The study adopted a descriptive, retrospective design using record reviews to collect data, in which 80 medical records of patients hospitalised for CHF in 1995 were reviewed. Descriptive statistics and Student's t-tests were performed. RESULTS: Breathlessness was the most common symptom (men 90%, women 86%). The largest gender difference was on limitation in physical activity (men=77%, women=37%, total=49%, P=0.001). CONCLUSION: (1) Twenty-one symptoms were observed, implicating that, patients with CHF in later stages of the disease experience a wide range of symptoms. (2) Despite the fact that several symptoms were documented by both nurses and physicians, it is quite remarkable that symptom-controlling measures were only provided sparingly. (3) A palliative care approach may benefit patients suffering from end-stage CHF.

Activities of Daily Living; Aged; Aged; 80 and over; Anorexia/etiology; Anxiety/epidemiology/*etiology/prevention & control; Constipation/etiology; Cough/etiology; Documentation/standards; Dyspnea/epidemiology/*etiology/prevention & control; Fatigue/epidemiology/*etiology/prevention & control; Female; Heart Failure/*complications/physiopathology/psychology; Humans; Male; Nausea/etiology; Pain/epidemiology/*etiology/prevention & control; Palliative Care/methods; Questionnaires; Retrospective Studies; Sex Distribution; Sleep Disorders/etiology; Sweden/epidemiology; Nursing; Omvårdnad; Article in journal; info:eu-repo/semantics/article; text

10.1016.S1474-5151(03)00059-8

Open access content. Open access content
info:eu-repo/semantics/restrictedAccess

English

UPE oai:DiVA.org:mdh-2917
0000-0003-0667-7111
doi:10.1016/S1474-5151(03)00059-8
PMID 14622629
Scopus 2-s2.0-0141793788
1233624998

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