International Primary Ciliary Dyskinesia (PCD) Registry (PCDregistry)

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المؤلفون: European Commission; University of Nicosia; Rigshospitalet, Denmark; KU Leuven; Hannover Medical School; Attikon Hospital; Amsterdam UMC, location VUmc; University of Bern; University of Southampton; Royal Brompton & Harefield NHS Foundation Trust; University of North Carolina; Ruhr University of Bochum; Federico II University; Hospital Vall d'Hebron; Medical University of Vienna; Marmara University; University Hospital, Martin; University of Pisa; Assistance Publique - Hôpitaux de Paris; University of Alberta; University of Giessen
المصدر:
International Prospective Primary Ciliary Dyskinesia (PCD) Registry for Systematic Data Collection on Incidence, Clinical Presentation, Treatment and Course of the Disease
Werner C, Lablans M, Ataian M, Raidt J, Wallmeier J, Grosse-Onnebrink J, Kuehni CE, Haarman EG, Leigh MW, Quittner AL, Lucas JS, Hogg C, Witt M, Priftis KN, Yiallouros P, Nielsen KG, Santamaria F, Uckert F, Omran H. An international registry for primary ciliary dyskinesia. Eur Respir J. 2016 Mar;47(3):849-59. doi: 10.1183/13993003.00776-2015. Epub 2015 Dec 8.