Item request has been placed! ×
Item request cannot be made. ×
loading  Processing Request

A person-centred intervention remotely targeting family caregivers' support needs in the context of allogeneic hematopoietic stem cell transplantation : A feasibility study

Item request has been placed! ×
Item request cannot be made. ×
loading   Processing Request
  • معلومة اضافية
    • بيانات النشر:
      Sophiahemmet Högskola
    • الموضوع:
      2022
    • Collection:
      Sophiahemmet University College: Publications
    • نبذة مختصرة :
      PURPOSE: Allogeneic hematopoietic stem cell transplantation (HSCT) is an intensive curative treatment that increases family caregivers' burden. The aim of this study was to explore the feasibility of remotely assessing and addressing family caregivers' support needs in terms of demand and acceptability using the Carer Support Needs Assessment Tool Intervention (CSNAT-I) in the HSCT context. METHODS: CSNAT-I consists of an evidence-based tool and a five-stage person-centred process. The intervention was performed remotely by two designated nurses from two HSCT centres, one before HSCT and the second 6 weeks after (November 2020 to March 2021). To capture the experiences of using CSNAT-I, interviews were conducted with family caregivers and reflections were gathered from the designated nurses. RESULTS: Of 34 eligible family caregivers, 27 participated, 70% were partners and the rest children, siblings or other relatives. The main support needs were knowing what to expect in the future and dealing with your feelings and worries. The most frequent support actions according to CSNAT-I were psychological support and medical information. Four categories summarised family caregivers and designated nurses' experiences: CSNAT-I was relevant and became an eye opener; nurses' experiences were important for enabling trustful CSNAT-I conversations; CSNAT-I provided family caregivers with support and a sense of security; and CSNAT-I gave family caregivers insight and enabled change. CONCLUSION: Both family caregivers and designated nurses experienced that using CSNAT-I in an HSCT context was feasible and had the potential to provide valuable support for most of the participating family caregivers.
    • File Description:
      application/pdf
    • Relation:
      Supportive Care in Cancer, 0941-4355, 2022, 30:11, s. 9039-9047; orcid:0000-0002-6331-8599; http://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-4589; PMID 35951098
    • الرقم المعرف:
      10.1007/s00520-022-07306-w
    • Rights:
      info:eu-repo/semantics/openAccess
    • الرقم المعرف:
      edsbas.EFCBE32C