نبذة مختصرة : Objetivo: verificar como escolares com hemofilia A e B realizam o autocuidado. Método: trata-se de estudo bibliográfico, descritivo, tipo revisão integrativa da literatura. Buscou-se publicações entre 2013 à 2018 nas bases de dados BDENF, LILACS, MEDLINE e Biblioteca Virtual SciELO. Analisaram-se os dados de forma descritiva a partir do estabelecimento de categorias. Resultados: informam-se que cinco artigos respondem ao objetivo estudado. Realizou-se após a análise a categorização dos estudos e se observaram os benefícios de empoderar o paciente por meio do autogerenciamento desde a infância e a necessidade de compreender o processo de doença crônica, promovendo um autogerenciamento eficaz por meio de rotinas pré-estabelecidas. Conclusão: percebe-se que há escassez de artigos que abordem a realidade brasileira, dificultando a compreensão do cenário nacional. Identificou-se a necessidade do escolar compreender a doença e gerar autonomia no gerenciamento do seu autocuidado. Descritores: Enfermagem Pediátrica; Autocuidado; Hemofilia A; Hemofilia B; Hematologia.AbstractObjective: to verify how children with hemophilia A and B perform self-care. Method: this is a bibliographic, descriptive, integrative literature review study. We searched publications from 2013 to 2018 in the databases BDENF, LILACS, MEDLINE and SciELO Virtual Library. Data were analyzed descriptively from the establishment of categories. Results: five articles respond to the objective studied. After the analysis, the studies were categorized and the benefits of empowering the patient through self-management from childhood and the need to understand the chronic disease process were promoted, promoting effective self-management through pre-established routines. Conclusion: it is clear that there is a shortage of articles that address the Brazilian reality, making it difficult to understand the national scenario. The need for children to understand the disease and generate autonomy in the management of their self-care was identified. Descriptors: ...
Relation: https://periodicos.ufpe.br/revistas/revistaenfermagem/article/view/241546/33906; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/view/241546/33907; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29638; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29639; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29640; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29641; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29757; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29759; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29760; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29761; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29762; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29763; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29764; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/downloadSuppFile/241546/29765; Silva TPS. Avaliação da Qualidade de vida relacionada à saúde em pacientes com hemofilias A e B atendidos na Fundação Hemominas – Minas Gerais, Brasil [dissertation] [Internet]. Belo Horizonte: Centro de Pesquisas René Rachou; 2015 [cited 2018 Aug 10]. Available from: https://www.arca.fiocruz.br/handle/icict/12287 2. Ministério da Saúde (BR), Secretaria de Atenção à Saúde, Coordenação Geral de Sangue e Hemoderivados. Perfil das coagulopatias hereditárias no Brasil: 2014 [Internet]. Brasília: Ministério da Saúde; 2015 [cited 2018 Aug]. Available from: http://bvsms.saude.gov.br/bvs/publicacoes/perfil_coagulopatias_hereditarias_brasil_2014.pdf 3. Gomes GC, Nornberg PKO, Jung BC, Nobre CMG, Rodrigues EF, Xavier DM. Chronic disease in children: family experience in diagnostic reception. J Nurs UFPE on line [Internet]. 2016 Dec [cited 2018 Aug 10];10(6):4837-44. Available from: https://periodicos.ufpe.br/revistas/revistaenfermagem/article/view/11263 4. Orem DE. Nursing: concepts of practice. New York: Mac Graw-Hill; 1971. 5. Holly KM, Henry EL. Schor. Supporting self-management of chronic health problems. Pediatrics. 2015 May;135(5):789-92. DOI:10.1542/peds.2014-3431 6. Lazzari DD, Martini JG, Busana JA. Teaching in higher education in nursing: an integrative literature review. Rev Gaúcha Enferm. 2015 July/Sept;36(3):93-101. DOI:10.1590/1983-1447.2015.03.49670 7. Piaget J. O nascimento da inteligência na criança. 4th ed. Rio de Janeiro: Zahar; 1973. 8. Souza NM, Wechsler AM. Reflections about Piaget's theory: the concrete operative stage. Cadernos de Educação Ensino e Sociedade [Internet]. 2014 [cited 2018 Aug 10];1(1):134-50. Available from: http://www.unifafibe.com.br/revistasonline/arquivos/cadernodeeducacao/sumario/31/04042014074217.pdf 9. Silva NP. Misconceptions regarding genetic epistemology and psichology. Schème Rev Eletrônica de Psicologia e Epistemologia Genéticas [Internet]. 2015 Aug/Dec [cited 2018 Aug 10];7(2). Available from: http://www2.marilia.unesp.br/revistas/index.php/scheme/article/view/5778 10. Galvão TF, Pansani TSA, Harrad D. Principais itens para relatar Revisões sistemáticas e Meta-análises: a recomendação PRISMA. Epidemiol Serv Saúde [Internet]. 2015 Apr/June [cited 2019 May 11];24(2):335-42. DOI:10.5123/S1679-49742015000200017 11. The University of Kent. Critical Appraisal of the Journal Literature. Critical Appraisal Skills Programme (CASP). Evaluation tool for quantitative studies [Internet]. England: Public Health Resource Unit; 2006 [cited 2019 June 15]. Available from: http://www.fhsc.salford.ac.uk/hcprdu/tools/quantitative 12. Kachooei AR, Badiei Z, Zandinezhad ME. Vicious cycle of multiple invasive treatments in a hemophilic inhibitor positive child with resistant knee flexion contracture, a case report. Arch Bone Jt Surg. 2013 Dec;1(2):116–9. PMID: 25207302 13. Khair K, Meerabeau L, Gibson F. Self‐management and skills acquisition in boys with haemophilia. Health Expect. 2015 Oct;18(5):1105–13. DOI:10.1111/hex.12083 14. Bérubé S, Mouillard F, Amesse C, Sultan S. Motivational techniques to improve self-care in hemophilia: the need to support autonomy in children. BMC Pediatrics [Internet]. 2016 Jan [cited 2018 Aug 02];16(4). Available from: https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-016-0542-9 15. Buckner TW, Witkop M, Guelcher C, Frey MJ, Hunter S, Peltier S, et al. Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study. Eur J Haematol. 2017 Apr;98(Suppl 86):05–17. DOI:10.1111/ejh.12854 16. Jadhav U, Mukherjee K. Assessment of healthcare measures, healthcare resource use, and cost of care among severe hemophilia A patients in Mumbai region of India. J Postgrad Med. 2018 JulY/Sept;64(3):138–44. DOi:10.4103/jpgm.JPGM_701_16 17. Souza, VN, Pereria As, Vesco NL, Brasil BMBL, Barbosa SM, Viana CDMR. Nurses´ knowledge of hemophilia clinics of on systematization nursing care. J Nurs UFPE on line [Internet]. 2016 May [cited 2018 Oct 10];10(5):1654-62. Available from: https://periodicos.ufpe.br/revistas/revistaenfermagem/article/view/13540/16307 18. Christensen P, Mikkelsen MR. Jumping off and being careful: children's strategies of risk management in everyday life. Sociol Health Illn. 2007 Jan;30(1):112–30. DOI:10.1111/j.1467-9566.2007.01046.x 19. World Federation of Hemophilia. A hemofilia em imagens [Internet]. Montreal (CA): WFH; 2004 [cited 2019 June 15]. Available from: http://www1.wfh.org/publications/files/pdf-1551.pdf 20. Barra DCC, Paim SMS, Dal Sasso GTM, Colla GW. Methods for developing mobile apps in health: an integrative review of the literature. Texto contexto-enferm. 2017 Jan;26(4):e2260017. DOI:10.1590/0104-07072017002260017 21. Vaz JC, Milbrath VM, Gabatz RIB, Krug FR, Hirschmann B, Oliveira MM. Care for families of children with chronic disease. J Nurs UFPE on line. 2018 May;12(5):1397-408. DOI:10.5205/1981-8963-v12i5a230852p1397-1408-2018 22. Anjali S, Maulik C. Realizing right to health through Universal health coverage. Rev Dir sanit. 2014 July/Oct;15(2):13-29. DOI:10.11606/issn.2316-9044.v15i2p13-29 23. Ramos KCB. Sistema Único De Saúde Brasileiro X Sistema De Saúde Norte Americano: um estudo comparativo [dissertation] [Internet]. Santa Catarina: Unisul; 2017 [cited 2018 Aug 10]. Available from: https://www.riuni.unisul.br/bitstream/handle/12345/5672/KLYSSIA_CAMARA_BRANDAO_RAMOS-%5B46738-11301-1-688448%5DKLYSSIA_-_TCC_-_VERSAO_POS_DEFESA.pdf?sequence=1&isAllowed=y 24. Alves BA, Calixto AATF. Aspects determinants of adherence to treatment of hypertension and diabetes in a primary care unit in the state of São Paulo. J Health Sci Inst [Internet]. 2012 [cited 2018 Aug 10];30(3):255-60. Available from: https://www.unip.br/presencial/comunicacao/publicacoes/ics/edicoes/2012/03_jul-set/V30_n3_2012_p255a260.pdf 25. Ramos EM. Iatrogenic complications in the emergency care of a public hospital. J Nurs UFPE on line. 2013 June;7(6):4514-20. DOI:10.5205/reuol.4164-33013-1-SM.0706201326; https://periodicos.ufpe.br/revistas/revistaenfermagem/article/view/241546
_1.png)
Processing Request
No Comments.