Contributors: Centre de recherche en épidémiologie et santé des populations (CESP); Université de Versailles Saint-Quentin-en-Yvelines (UVSQ)-Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Hôpital Paul Brousse-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université Paris-Saclay; Laboratoire d'Imagerie Biomédicale Paris (LIB); Institut National de la Santé et de la Recherche Médicale (INSERM)-Sorbonne Université (SU)-Centre National de la Recherche Scientifique (CNRS); Biostatistique, Biomathématique, Pharmacoépidémiologie et Maladies Infectieuses (B2PHI); Université de Versailles Saint-Quentin-en-Yvelines (UVSQ)-Institut Pasteur Paris (IP)-Institut National de la Santé et de la Recherche Médicale (INSERM); Service de Rééducation des pathologies neurologiques acquises de l'enfant Hôpitaux de Saint Maurice; Hôpitaux de Saint Maurice (HNSM); Hôpital Necker - Enfants Malades AP-HP; Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP); UFR Médecine Santé - Université Paris Cité (UFR Médecine UPCité); Université Paris Cité (UPCité); AOM 03018; The initial data collection for the initiation of the cohort study was funded by the D?partement de la Recherche Clinique et du Developpement, AP-HP (Paris, No. PHRC 2003; AOM 03018). In depth analyses and manuscript preparation were funded thanks to a co-funding by the French Ministry of Health?s general direction of health and direction of research, studies, assessment and statistics, by the national fund for health insurance of salaried workers, the national fund for health insurance of independent workers, by the national fund for solidarity and autonomy and by the national institute for prevention and education for health, in the call for research projects launched by the IReSP in 2011, and by two grants awarded to Hugo C?mara-Costa: one grant from the French Speaking Society of Research in Children with Disabilities (SFERHE, www.sferhe.org) and one joint grant from the French Traumatic Brain Injury Society (France Traumatisme Cr?nien?FTC) and the French Speaking Society of Physical Medicine and Rehabilitation (SOFMER, www.sofmer.com). The authors wish to thank Doctor Fr?d?ric Courage for his valuable help in the recruitment of the control participants.
نبذة مختصرة : International audience ; Purpose: Participation in home, school and community activities is considered as the ultimate aim of rehabilitation. The aims of this study were to examine participation seven years post-severe childhood traumatic brain injury and factors associated with participation. Materials and methods: Participants were enrolled in the Traumatisme Grave de l’Enfant (Severe Childhood Injury) cohort study following severe accidental childhood traumatic brain injury. Participation seven years post-injury, was examined using parent- and self-report forms of the Child and Adolescent Scale of Participation among 37 patients [62% males, mean age 15.4 years (SD = 4.4), mean length of coma 6.68 days (SD = 4.96)] and 33 matched controls. Results: Parent reports indicated significantly lower participation among patients compared to controls, but the self-reports did not. In the traumatic brain injury group, parent-reported participation was variable, with 22% of the patients clearly showing greater restrictions than controls. Participation restrictions were significantly associated with injury severity, poor functional outcome one-year post-injury, executive and behavioral difficulties and higher fatigue levels seven years post-injury, but not with pre-injury nor family factors. Conclusions: Several years after severe childhood traumatic brain injury, participation appears to depend more on injury-related factors than on environmental factors. In self-reports assessments of participation, it could be difficult for children and adolescents to distinguish capacity from performance.
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