Qualidade de vida de cuidadores de crianças e adolescentes com condições crônicas

Chronic conditions (CC) are health problems that require continuous management for an indeterminate period of time. It is known that in childhood and adolescence, CC does not only affect the child / adolescent, but the whole family. However, the primary caregiver is the most affected family member, since he needs to change his whole routine to devote himself to care. In this perspective, the present study aimed to evaluate the quality of life of caregivers of children and adolescents with chronic conditions registered in the Information System for Children of Adolescents with Chronic Diseases (SICADC). It is a research of the analytical type, descriptive-explanatory, of quantitative nature, with a cross-sectional design. Data for the development of the study were obtained through the SICADC. Currently, the system has 300 children and adolescents enrolled, as well as their respective caregivers. Of these, 20 adolescents were over 18 years of age and 18 children / adolescents died. Thus, an accessible population of 262 caregivers remained. Based on this quantitative, a sample calculation with a confidence level of 95% and an error of 5.5% was obtained, thus obtaining a sample of 143 caregivers, who were selected from a physical process of randomization. Data collection took place between August and October 2018 and occurred as follows: after selecting a caregiver registered in SICADC, the researcher contacted the application for the quality of life instrument, the World Health Organization Quality of Life, abbreviated version (WHOQOL-Bref). Subsequently, the results of this measurement were evaluated along with the information provided in the SICADC. For the analysis of the data, Descriptive Statistics, a Binary Logistic Regression model and the Decision Tree were used. As a result, in a WHOQOL Bref analysis, the total quality of life score of the caregivers obtained a median of 61. Among the domains of the instrument, the domains of environment and social relations were most affected. From the binary logistic ...