Governance of Heritable Human Genome Editing: Developing a Regulatory Framework for a Transformative Technology

With the discovery of CRISPR and its potential uses in genome editing of the human germline, the end to hereditary diseases and infertility seems closer than ever before. However, as is always the case with emerging transformative technologies, there are caveats. This paper seeks to explore possibilities and pitfalls in the regulation of and policy-making around heritable human genome editing, with a focus on the international (bioethics) law and human rights law perspective.