Demands of children with special health care needs in primary care in Rio de Janeiro ; Demandas de crianças com necessidades especiais de saúde na atenção primária da cidade do Rio de Janeiro

Objective: To analyze the demands of children with special health care needs, which implied some changes in the way of taking care at home. Method: Descriptive research implemented with data from Children with Special Health Care Needs Screener© - Brazilian version, integrated with the tri-centric study (Santa Maria – RS, Rio de Janeiro-RJ, and Ribeirão Preto – SP). We interviewed 589 families of children under 12 years old in 12 primary health care units. Data were treated with descriptive statistics. Results: According to the domain of special needs, the children's prevalence was 12,4%, being the chronic respiratory and cutaneous diseases the most predominant. In this group, 63% self-declared black and brown skin and 37% white color; 35,6% received benefits from programs of cash transfer (Bolsa Família Programme and Continuous Cash Benefit); 20,5% would live in a community wherein garbage and sewage were discarded at an open-air, with untreated water. Conclusion: The social conditions of vulnerabilities were added to the clinical one, affecting the way those children were taken care of at home. Knowledge regarding the needs, living conditions, care, and access demands can help restructure services and primary health care welcoming. ; Objetivo: Analisar demandas de crianças com necessidades especiais de saúde que implicaram em mudanças na forma de cuidar em casa. Método: Pesquisa descritiva implementada com dados do Children with Special Health Care Neesds Screener© - versão brasileira, integrada ao estudo tricêntrico (Santa Maria – RS, Rio de Janeiro-RJ e Ribeirão Preto – SP). Entrevistou-se 589 familiares de crianças com menos de 12 anos, em 12 serviços da atenção primária. Dados tratados com estatística descritiva. Resultados: Segundo os domínios de necessidades especiais, a prevalência dessas crianças foi 12,4%, predominando as doenças crônicas respiratórias e tegumentares. Desse grupo, 63% era da raça/cor parda e preta e 37% branca; 35,6% eram beneficiados com programas de transferência de renda (bolsa ...