نبذة مختصرة : Derek Santos - orcid:0000-0001-9936-715X orcid:0000-0001-9936-715X ; Purpose of Review This critical review begins by presenting the history of Juvenile Idiopathic Arthritis (JIA) management. To move the conversation forward in addressing the current shortcomings that exist in the clinical management of children living with JIA, we argue that to date, the advancement of successful treatments for JIA has been historically slow. Factors implicated in this situation include a lack of rigorous research, JIA being considered a rare disease, and JIA’s idiopathic and complex pathophysiology. Recent Findings Despite the well-intended legislative changes to increase paediatric research, and the major advancements seen in molecular medicine over the last 30 years, globally, paediatric rheumatology services are still failing to meet the current benchmarks of best practice. Provoking questions on how the longstanding health care disparities of poor access and delayed treatment for children living with JIA can be improved, to improve healthcare outcomes. Summary Globally, paediatric rheumatology services are failing to meet the current benchmarks of best practice. Raising awareness of the barriers hindering JIA management is the first step in reducing the current health inequalities experienced by children living with JIA. Action must be taken now, to train and well-equip the paediatric rheumatology interdisciplinary workforce. We propose, a resource-efficient way to improve the quality of care provided could be achieved by embedding digital health into clinical practice, to create an integrative care model between the children, general practice and the paediatric rheumatology team. To improve fragmented service delivery and the coordination of interdisciplinary care, across the healthcare system. ; Open Access funding enabled and organized by CAUL and its Member Institutions ; https://doi.org/10.1007/s11926-024-01145-w ; aheadofprint ; aheadofprint
Relation: Current Rheumatology Reports; https://eresearch.qmu.ac.uk/handle/20.500.12289/13692; Butler, S., Sculley, D., Santos, D., Girones, X., Singh-Grewal, D. and Coda, A. (2024) ‘Paediatric Rheumatology Fails to Meet Current Benchmarks, a Call for Health Equity for Children Living with Juvenile Idiopathic Arthritis, Using Digital Health Technologies’, Current Rheumatology Reports. Available at: https://doi.org/https://doi.org/10.1007/s11926-024-01145-w.; https://doi.org/10.1007/s11926-024-01145-w
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