نبذة مختصرة : Hemophilia is a blood clotting disorder. Important psychosocial aspects permeate all hemophiliac and their families’ life cycles, including the insertion into school life. This research was based on the perspective of an analysis of inclusive school as a support network for the hemophilic child/adolescent. The context of the research was of the schools of São Paulo and Great São Paulo area, cataloged by the Hemophilia Service of Hospital São Paulo (HSP), and the target audience was composed of managers, teachers and family members. The research had the qualitative design, with an exploratory and descriptive character. For the data collection, semi-structured individual interviews were used, being treated by Content Analysis in the thematic modality. Three axes were constructed: school challenges as a support network for the child/adolescent with hemophilia, intersectoral actions and other strategies to strengthen the school as a support network for the child/adolescent with hemophilia and the centrality of knowledge concerning the disease in perspective of the hosting and inclusion of the child/adolescent with hemophilia, which evidenced the family as the main source of information regarding hemophilia, the lack of integration among the school actors, the non-acknowledgment of the school as an active member of the support network, as well as the difficulties of including a disease with low prevalence and its impacts, such as: misinformation, fear and overprotection. There was also evidence of a lack of integration between the Hemophilia Service and Other Hereditary Coagulopathies of the HSP and the schools it serves and the inexistence of intersection actions between the Education and the Healthcare Secretariats. ; A Hemofilia é um distúrbio de coagulação do sangue. Importantes aspectos psicossociais perpassam por todos os ciclos de vida do hemofílico e sua família, dentre eles a inserção na vida escolar. Esta pesquisa pautou-se na perspectiva de análise da escola inclusiva enquanto rede de apoio para a ...
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