Chronic Diseases in Children as a Challenge for Parenting.

Publisher: Makedonska akademija na naukite i umetnostite Country of Publication: North Macedonia NLM ID: 101677081 Publication Model: Electronic-Print Cited Medium: Internet ISSN: 1857-8985 (Electronic) Linking ISSN: 18579345 NLM ISO Abbreviation: Pril (Makedon Akad Nauk Umet Odd Med Nauki) Subsets: MEDLINE

Original Publication: Skopje : Makedonska akademija na naukite i umetnostite, [2013]-

Chronic Disease* ; Parenting*; Child ; Female ; Humans ; Male

To be a parent or a caregiver in a modern society is a very difficult task, including multiple demands and expectations. Parenting imposes a special role in the life of any couple, especially for the mother, roles which must be learned through personal education, enriched by transgenerational experience. Chronic disease is recognized as a large stressor that affects the current situation of a child and a child's family. In this difficult situation, the family must go through a process of learning how to cope with it. In the family, where a child has a long-term health problem, there are certain behaviours that hinder the normal functioning of family relationships. According to the experience of many researchers, including my own, there is an indication that a child's illness often leads to the divorce of the parents. The fathers of sick children are often the initiators of such decisions. The purpose of this article was to find if there are differences in parenting between mothers and fathers of chronically ill children. The methodology is comprised of a review of published articles in PubMed over the last two decades related to parenting when there is chronic illness in children. More than 500 articles related to the topic were found. Obtained results were discussed.
(© 2023 Nada Pop-Jordanova, published by Sciendo.)

Cardenas SI, Vilarroya O, Desco M, Carmona S, Saxbe DE. First-time fathers show longitudinal grey matter cortical volume reductions: evidence from two international samples. Cereb Cortex. 2022 Sep 4: bhac333. doi: 10.1093/cercor/bhac333 . Epub ahead of print. PMID: 36057840. (PMID: 10.1093/cercor/bhac333)
E. Van Assche, E. Vangeel, K. Van Leeuwen, H. Colpin, K. Verschueren, W. Van den Noortgate, L. Goossens, S. Claes. (2022) Strict parenting may hard-wire depression risk into a child’s DNA. https://www.ecnp.eu/Congress2022/ECN-Pcongress .
P W Newacheck, and W R Taylor Institute for Health Policy Studies, University of California, San Francisco 94109. “Childhood chronic illness: prevalence, severity, and impact.”, American Journal of Public Health 82, no. 3 (March 1, 1992): pp. 364-371.
CDC’s National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP), 2020].
Logan DE, Scharff L. Relationships between family and parent characteristics and functional abilities in children with recurrent pain syndromes: an investigation of moderating effects on the pathway from pain to disability. Journal of Pediatric Psychology. 2005;30(8):698–707.
Palermo 2007. Palermo TM, Chambers CT. Parent and family factors in paediatric chronic pain and disability: an integrative approach. Pain. 2005;119(1–3):1–4.
Palermo 2009a. Palermo TM, Wilson AC, Peters M, Lewandowski A, Somhegyi H. Randomized controlled trial of an internet delivered family cognitive-behavioral therapy intervention for children and adolescents with chronic pain. Pain. 2009;146(1–2):205–13. doi: 10.1016/j.pain.2009.07.034 . (PMID: 10.1016/j.pain.2009.07.034)
Palermo 2009b. Palermo TM, Eccleston C. Parents of children and adolescents with chronic pain. Pain. 2009;146(1–2):15–7.
Guz E, Brodowicz-Król M, Kulbaka E, Bartoszuk-Popko M, Lutomski P. Parents’ attitudes towards a difficult situation resulting from a chronic disease of a child. Ann Agric Environ Med. 2020; 27(3): 476–480. doi: 10.26444/aaem/119085. (PMID: 10.26444/aaem/119085)
Поп-Јорданова Н. Психолошки особености на хронично болни деца, Мак. Мед. Преглед, 1992; 1-2: 32-35.
Поп-Јорданова Н. Психосоцијални аспекти на хроничните болести кај децата, Педијатрија: годишна ревија, 1999; 5: 107-121.
Pop-Jordanova N., Zorcec T. Chronic diseases in children and adolescents - some psychological characteristics, Paediatr. Croat., 2008; 52: 71-76.
Cohn LN, Pechlivanoglou P, Lee Y, Mahant S, Orkin J, Marson A, Cohen E. Health Outcomes of Parents of Children with Chronic Illness: A Systematic Review and Meta-Analysis. J Pediatr. 2020 Mar;218:166-177.e2. doi: 10.1016/j. jpeds.2019.10.068 . Epub 2020 Jan 6. PMID: 31916997. (PMID: 10.1016/j. jpeds.2019.10.068)
Patiño-Fernández AM, Pai AL, Alderfer M, Hwang WT, Reilly A, Kazak AE. Acute stress in parents of children newly diagnosed with cancer. Pediatr Blood Cancer. 2008 Feb;50(2):289-92. doi: 10.1002/pbc.21262 . PMID: 17514742; PMCID: PMC2811161. (PMID: 10.1002/pbc.21262)
Lindström C, Aman J, Norberg AL. Increased prevalence of burnout symptoms in parents of chronically ill children. Acta Paediatr. 2010 Mar;99(3):427-32. doi: 10.1111/j.1651-2227.2009.01586.x . Epub 2009 Nov 12. PMID: 19912139. (PMID: 10.1111/j.1651-2227.2009.01586.x)
Hemmingsson H, Ólafsdóttir LB, Egilson ST. Agreements and disagreements between children and their parents in health-related assessments. Disabil Rehabil. 2017 Jun;39(11):1059-1072. doi: 10.1080/09638288.2016.1189603 . Epub 2016 Jun 13. PMID: 27291406. (PMID: 10.1080/09638288.2016.1189603)
Kirby AV, Diener ML, Dean EE, Darlington AN, Myers A, Henderson J. Autistic Adolescents’ and Their Parents’ Visions for the Future: How Aligned are They? Autism Adulthood. 2022 Mar;4(1):32-41. doi: 10.1089/aut.2020.0061 . Epub 2021 Sep 22. PMID: 35663130; PMCID: PMC8992901. (PMID: 10.1089/aut.2020.0061)
Williams KE, Ciarrochi J, Heaven PC. Inflexible parents, inflexible kids: a 6-year longitudinal study of parenting style and the development of psychological flexibility in adolescents. J Youth Adolesc. 2012 Aug;41(8):1053-66. doi: 10.1007/s10964-012-. (PMID: 10.1007/s10964-012-)
D’Zurilla TJ, Goldfried MR. Problem solving and behavior modification. J Abnorm Psychol. 1971 Aug;78(1):107-26. doi: 10.1037/h0031360 . PMID: 4938262. (PMID: 10.1037/h0031360)
Sahler OJ, Varni JW, Fairclough DL, Butler RW, Noll RB, Dolgin MJ, Phipps S, Copeland DR, Katz ER, Mulhern RK. “Problem-solving skills training for mothers of children with newly diagnosed cancer: a randomized trial.” Journal of developmental and behavioral pediatrics : JDBP.. 2002 Apr; 23(2):77-86.
Sahler OJ, Fairclough DL, Phipps S, Mulhern RK, Dolgin MJ, Noll RB, Katz ER, Varni JW, Copeland DR, Butler RW. “Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: report of a multisite randomized trial.” Journal of consulting and clinical psychology. 2005 Apr; 73(2):272-83.
Ellis, D. A., Podolski, C. L., Frey, M., Naar-King, S., Wang, B., & Moltz, K. (2007). The role of parental monitoring in adolescent health outcomes: Impact on regimen adherence in youth with type 1 diabetes. Journal of Pediatric Psychology,32, 907–917.
Wysocki, T., & Gavin, L. (2004). Psychometric properties of a new measure of fathers’ involvement in the management of pediatric chronic diseases. Journal of Pediatric Psychology,29(3), 231–240.
Wysocki, T., & Gavin, L. (2006). Paternal Involvement in the management of pediatric chronic diseases: Associations with adherence, quality of life, and health status. Journal of Pediatric Psychology Advance Access Publication July Journal of Pediatric Psychology,31(5), 501–511. https://doi.org/10.1093/jpepsy/jsj042 . (PMID: 10.1093/jpepsy/jsj042)
Wysocki, T., Nansel, T. R., Holmbeck, G. N., Chen, R., Laffel, L., Anderson, B. J., & Weiss-berg-Benchell, J. (2009). Collaboative involvement of primary and secondary cargeivers: Associations with youths’ diabetes outcomes. Journal of Pediatric Psychology,34(8), 869–881. https://doi.org/10.1093/jpepsy/jsn136 . (PMID: 10.1093/jpepsy/jsn136)
Eccleston C, Palermo TM, Fisher E, Law E. Psychological interventions for parents of children and adolescents with chronic illness. Cochrane Database Syst Rev 2012;8:CD009660.].
Corry M, Neenan K, Brabyn S, Sheaf G, Smith V. Telephone interventions, delivered by health-care professionals, for providing education and psychosocial support for informal caregivers of adults with diagnosed illnesses. Cochrane Database Syst Rev. 2019 May 14;5(5):CD012533. doi: 10.1002/14651858.CD012533.pub2. PMID: 31087641; PMCID: PMC6516056.
Pilecka W, Stachel M. Psychologia zdrowia dzieci i młodzieży. Perspektywa kliniczna, Wydawnictwo Uniwersytetu Jagiellońskiego, Kraków 2011].

Keywords: children; chronic diseases; parenting

Date Created: 20230329 Date Completed: 20230330 Latest Revision: 20230330

20230331

10.2478/prilozi-2023-0004

36987760