Estimating the Prevalence of Autism Spectrum Disorder in New South Wales, Australia: A Data Linkage Study of Three Routinely Collected Datasets.

Publisher: Springer Country of Publication: United States NLM ID: 7904301 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-3432 (Electronic) Linking ISSN: 01623257 NLM ISO Abbreviation: J Autism Dev Disord Subsets: MEDLINE

Publication: <2006- >: New York, NY : Springer
Original Publication: New York, Plenum Press.

Autism Spectrum Disorder*/epidemiology; Child ; Humans ; Female ; Young Adult ; Adult ; New South Wales/epidemiology ; Prevalence ; Australia ; Information Storage and Retrieval

Routinely collected data help estimate the prevalence of autism spectrum disorder (ASD) in jurisdictions without active autism surveillance. We created a population-based cohort of 1,211,834 children born in 2002-2015 in New South Wales, Australia using data linkage. Children with ASD were identified in three datasets - disability services, hospital admissions, and ambulatory mental health data. The prevalence of ASD in the cohort was 1.3% by age 12 and prevalence at age 6 increased an average of 4.1% per year (95% Confidence Interval, 3.3%, 4.8%). Most children with ASD were identified in disability services data (87%), although data linkage identified 1,711 additional cases that were more likely female, older at first contact, and living in major cities and less disadvantaged areas.
(© 2022. The Author(s).)

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APP1197940 National Health and Medical Research Council

Keywords: Australia; Autism; Data linkage; Prevalence

Date Created: 20230118 Date Completed: 20240401 Latest Revision: 20240402

20240402

PMC10981615

10.1007/s10803-022-05887-3

36652127