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Validation of the patient assessment of chronic illness care (PACIC) short form scale in heart transplant recipients: the international cross-sectional bright study.

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اقرأ على الانترنت اقرأ أكثر حفظ في قائمتي
  • معلومة اضافية
    • Corporate Authors:
      BRIGHT study team
    • المصدر:
      Publisher: BioMed Central Country of Publication: England NLM ID: 101088677 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-6963 (Electronic) Linking ISSN: 14726963 NLM ISO Abbreviation: BMC Health Serv Res Subsets: MEDLINE
    • بيانات النشر:
      Original Publication: London : BioMed Central, [2001-
    • الموضوع:
      Heart Transplantation* ; Surveys and Questionnaires*; Chronic Disease/*therapy; Adult ; Aged ; Australia ; Canada ; Cross-Sectional Studies ; Factor Analysis, Statistical ; Female ; Humans ; Language ; Male ; Middle Aged ; Reproducibility of Results ; United Kingdom ; United States
    • نبذة مختصرة :
      Background: Transplant recipients are chronically ill patients, who require lifelong follow-up to manage co-morbidities and prevent graft loss. This necessitates a system of care that is congruent with the Chronic Care Model. The eleven-item self-report Patient Assessment of Chronic Illness Care (PACIC) scale assesses whether chronic care is congruent with the Chronic Care Model, yet its validity for heart transplant patients has not been tested.
      Methods: We tested the validity of the English version of the PACIC, and compared the similarity of the internal structure of the PACIC across English-speaking countries (USA, Canada, Australia and United Kingdom) and across six languages (French, German, Dutch, Spanish, Italian and Portuguese). This was done using data from the cross-sectional international BRIGHT study that included 1378 heart transplant patients from eleven countries across 4 continents. To test the validity of the instrument, confirmatory factor analyses to check the expected unidimensional internal structure, and relations to other variables, were performed.
      Results: Main analyses confirmed the validity of the English PACIC version for heart transplant patients. Exploratory analyses across English-speaking countries and languages also confirmed the single factorial dimension, except in Italian and Spanish.
      Conclusion: This scale could help healthcare providers monitor level of chronic illness management and improve transplantation care.
      Trial Registration: Clinicaltrials.gov ID: NCT01608477, first patient enrolled in March 2012, registered retrospectively: May 30, 2012.
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    • Contributed Indexing:
      Investigator: MG Crespo-Leiro; P De Simone; A Groenewoud; C Kugler; L Ohler; J Van Cleemput; AJ Poncelet; L Sebbag; M Michel; A Bernard; A Doesch; U Livi; V Manfredini; V Brossa-Loidi; J Segovia-Cubero; L Almenar-Bonet; C Segura Saint-Gerons; P Mohacsi; E Horvath; C Riotto; G Parry; A Firouzi; S Kozuszko; H Haddad; A Kaan; G Fisher; T Miller; M Flattery; K Ludrosky; B Coleman; J Trammell; K St Clair; A Kao; M Molina; K Ryan Canales; S Scalso de Almeida; A Cotait Ayoub; F Barone; M Harkess; J Maddicks-Law
      Keywords: Chronic care model; Heart transplantation; Language; Multi-center trial; PACIC short form; Transplant team
    • Molecular Sequence:
      ClinicalTrials.gov NCT01608477
    • الموضوع:
      Date Created: 20200305 Date Completed: 20200625 Latest Revision: 20240328
    • الموضوع:
      20240329
    • الرقم المعرف:
      PMC7055084
    • الرقم المعرف:
      10.1186/s12913-020-5003-3
    • الرقم المعرف:
      32126998