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Family members' experiences of waiting in intensive care: a concept analysis.
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- المؤلفون: Björk K;Björk K;Björk K; Lindahl B; Lindahl B; Fridh I; Fridh I
- المصدر:
Scandinavian journal of caring sciences [Scand J Caring Sci] 2019 Sep; Vol. 33 (3), pp. 522-539. Date of Electronic Publication: 2019 Mar 13.- نوع النشر :
Journal Article; Systematic Review- اللغة:
English - المصدر:
- معلومة اضافية
- المصدر: Publisher: Taylor & Francis Country of Publication: Sweden NLM ID: 8804206 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1471-6712 (Electronic) Linking ISSN: 02839318 NLM ISO Abbreviation: Scand J Caring Sci
- بيانات النشر: Publication: Stockolm, Sweden : Taylor & Francis
Original Publication: Stockholm, Sweden : Almquist & Wiksell Periodical Co., [1987?- - الموضوع:
- نبذة مختصرة : Aim: The aim of this study was to explore the meaning of family members' experience of waiting in an intensive care context using Rodgers' evolutionary method of concept analysis.
Method: Systematic searches in CINAHL and PubMed retrieved 38 articles which illustrated the waiting experienced by family members in an intensive care context. Rodgers' evolutionary method of concept analysis was applied to the data.
Findings: In total, five elements of the concept were identified in the analysis. These were as follows: living in limbo; feeling helpless and powerless; hoping; enduring; and fearing the worst. Family members' vigilance regarding their relative proved to be a related concept, but vigilance does not share the same set of attributes. The consequences of waiting were often negative for the relatives and caused them suffering. The references show that the concept was manifested in different situations and in intensive care units (ICUs) with various types of specialties.
Conclusions: The application of concept analysis has brought a deeper understanding and meaning to the experience of waiting among family members in an intensive care context. This may provide professionals with an awareness of how to take care of family members in this situation. The waiting is inevitable, but improved communication between the ICU staff and family members is necessary to reduce stress and alleviate the suffering of family members. It is important to acknowledge that waiting cannot be eliminated but family-centred care, including a friendly and welcoming hospital environment, can ease the burden of family members with a loved one in an ICU.
(© 2019 Nordic College of Caring Science.) - References: Irvin SK. Waiting: concept analysis. Nurs Diagn 2001; 12: 128-36.
Fogarty C, Cronin P. Waiting for healthcare: a concept analysis. J Adv Nurs 2008; 61: 463-71.
Sadeghi T, Nayeri ND, Abbaszadeh A. The waiting process: a grounded theory study of families’ experiences of waiting for patients during surgery. J Res Nurs 2015; 20: 372-82.
Trimm DR, Sanford JT. The process of family waiting during surgery. J Fam Nurs 2010; 16: 435-61.
Jeonghyun K, Chiyoung C. Experience of fathers of neonates with congenital heart disease in South Korea. Heart Lung 2017; 46: 439-43.
Bremer A, Dahlberg K, Sandman L. Experiencing out-of-hospital cardiac arrest: significant others’ lifeworld perspective. Qual Health Res 2009; 19: 1407-20.
Cater R, Taylor J. The experiences of heart transplant recipients’ spouses during the pretransplant waiting period: integrative review. J Clin Nurs 2017; 26: 2865-77.
Al-Mutair AS, Plummer V, O'Brien A, Clerehan R. Family needs and involvement in the intensive care unit: a literature review. J Clin Nurs 2013; 22: 1805-17.
Obeidat H, Bond E, Callister L. The parental experience of having an infant in the newborn intensive care unit. J Perinat Educ 2009; 18: 23-29.
Vasconcelos E, Freitas K, Da Silva S, Baia R, Tavares R, Araújo J. The daily life of relatives of patients admitted in ICU: a study with social representations. J Res Fundam Care Online 2016; 8: 4313-27.
Van Horn E, Tesh A. The effect of critical care hospitalization on family members: stress and responses. Dimens Crit Care Nurs 2000; 19: 40-49.
De Beer J, Brysiewicz P. The needs of family members of intensive care unit patients: a grounded theory study. S Afr Med J 2017; 32: 44-49.
Bizek SB, Fontaine KD. The patient's experience with critical care illness. In Critical Care Nursing - A Holistic Approach (Morton GP, Fontaine KD eds), 2013, Lippincott Williams & Wilkins, Philadelphia, 15-28.
McAdam JL, Fontaine DK, White DB, Dracup KA, Puntillo KA. Psychological symptoms of family members of high-risk intensive care unit patients. Am J Crit Care 2012; 21: 386-94.
Davidson EJ, Jones JC, Bienvenu JO. Family response to critical illness: postintensive care syndrome-family. Crit Care Med 2012; 40: 618-24.
Carlson EB, Spain DA, Muhtadie L, McDade-Montez L, Macia KS. Care and caring in the ICU: family members’ distress and perceptions about staff skills, communication, and emotional support. J Crit Care 2015; 30: 557-61.
Azoulay E, Pochard F, Kentish-Barnes N, Chevret S, Aboab J, Adrie C, Annane D, Bleichner G, Bollaert PE, Darmon M, Fassier T, Galliot R, Garrouste-Orgeas M, Goulenok C, Goldgran-Toledano D, Hayon J, Jourdain M, Kaidomar M, Laplace C, Larché J, Liotier J, Papazian L, Poisson C, Reignier J, Saidi F, Schlemmer B, FAMIREA Study Group. Risk of post-traumatic stress symptoms in family members of intensive care unit patients. Am J Respir Crit Care Med 2005; 171: 987-94.
Molter NC. Needs of relatives of critically ill patients: a descriptive study. Heart Lung 1979; 8: 332-9.
Leske JS. Needs of relatives of critically ill patients: a follow-up. Heart Lung 1986; 15: 189-93.
Leske JS. Interventions to decrease family anxiety. Crit Care Nurse 2002; 22: 61-65.
Omari FH. Perceived and unmet needs of adult Jordanian family members of patients in ICUs. J Nurs Scholarsh 2009; 41: 28-34.
Zainah M, Sasikala M, Nurfarieza MA, Ho SE. Needs of family members of critically ill patients in a critical care unit at universiti Kebangsaan Malaysia medical centre. Med Health 2016; 11: 11-21.
Fridh I, Forsberg A, Bergbom I. End-of-life care in intensive care units - family routines and environmental factors. Scand J Caring Sci 2007; 21: 25-31.
Kohi TW, Obogo MW, Mselle LT. Perceived needs and level of satisfaction with care by family members of critically ill patients at Muhimbili National hospital intensive care units, Tanzania. BMC Nurs 2016; 15: 18.
Plakas S, Taket A, Cant B, Fouka G, Vardaki Z. The meaning and importance of vigilant attendance for the relatives of intensive care unit patients. Nurs Crit Care 2014; 19: 243-54.
Kutash M, Northrop L. Family members’ experiences of the intensive care unit waiting room. J Adv Nurs 2007; 60: 384-8.
Bijttebier P, Vanoost S, Delva D, Ferdinande P, Frans E. Needs of relatives of critical care patients: perceptions of relatives, physicians and nurses. Intensive Care Med 2001; 27: 160-5.
Hunziker S, McHugh W, Sarnoff-Lee B, Cannistraro S, Ngo L, Marcantonio E, Howell MD. Predictors and correlates of dissatisfaction with intensive care. Crit Care Med 2012; 40: 1554-61.
Hardicre J. Nurses’ experiences of caring for the relatives of patients in ICU. Nurs Times 2003; 99: 34-37.
Fateel EE, O'Neill CS. Family members’ involvement in the care of critically ill patients in two intensive care units in an acute hospital in Bahrain: the experiences and perspectives of family members’ and nurses’ - a qualitative study. Clin Nurs Stud 2016; 4: 57-69.
Stayt LC. Nurses’ experiences of caring for families with relatives in intensive care units. J Adv Nurs 2007; 57: 623-30.
Engström Å, Söderberg S. Close relatives in intensive care from the perspective of critical care nurses. J Clin Nurs 2007; 16: 1651-9.
Rodgers BL. Concepts, analysis and the development of nursing knowledge: the evolutionary cycle. J Adv Nurs 1989; 14: 330-5.
Svenska Intensivvårdsregistret (SIR) [Swedish Intensive Care Registry]. Svenska Intensivvårdsregistret (SIR) Årsrapport 2016: Sammanfattning, analys och reflektioner [Swedish Intensive Care Registry Annual Report 2016: Summary, analysis and reflections], http://www.icuregswe.org/Documents/Annual%20reports/2016/Analyserande_arsrapport_2016.pdf (last accessed 30 October 2017).
Martinsen K. Care and Vulnerability. 2006, Akribe, Oslo.
Levy-Malmberg R, Eriksson K, Lindholm L. Caritas - caring as an ethical conduct. Scand J Caring Sci 2008; 22: 662-7.
Rodgers BL. Concept analysis: An evolutionary view. In Concept Development in Nursing: Foundations, Techniques and Applications (Rodgers BL, Knafl KA eds), 2000, Saunders, Philadelphia, 77-102.
Rodgers BL, Knafl KA. Concept Development in Nursing: Foundations, Techniques and Applications. 2000, Saunders, Philadelphia.
Oxford University Press. Oxford English Dictionary Online, 2017, Oxford University Press, Oxford.
Norton CK. The family's experience with critical illness. In Critical Care Nursing - A Holistic Approach (Morton GP, Fontaine KD eds), 2013, Lippincott Williams & Wilkins, Philadelphia, 29-38.
Harvey JH, Omarzu J. Minding the Close Relationship : A Theory of Relationship Enhancement. 2006, Cambridge University Press, Cambridge.
Eriksson T, Bergbom I. Visits to intensive care unit patients - frequency, duration and impact on outcome. Nurs Crit Care 2007; 12: 20-26.
Tofthagen R, Fagerstrøm LM. Rodgers’ evolutionary concept analysis - a valid method for developing knowledge in nursing science. Scand J Caring Sci 2010; 24: 21-31.
World Medical Association [WMA]. WMA Declaration of Helsinki - Ethical Principles for Medical Research Involving Human Subjects, https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ (last accessed 29 October 2017).
European Science Foundation [ESF]. The European Code of Conduct for Research Integrity, https://www.nsf.gov/od/oise/Code_Conduct_ResearchIntegrity.pdf (last accessed 29 October 2017).
Burr G. Contextualizing critical care family needs through triangulation: an Australian study. Intensive Crit Care Nurs 1998; 14: 161-9.
Fishering R, Broeder JL, Donze A. A qualitative study: NICU nurses as NICU parents. Adv Neonatal Care 2016; 16: 74-86.
Hall EOC. Being in an alien world: Danish parents’ lived experiences when a newborn or small child is critically ill. Scand J Caring Sci 2005; 19: 179-85.
Fridh I, Forsberg A, Bergbom I. Close relatives’ experiences of caring and of the physical environment when a loved one dies in an ICU. Intensive Crit Care Nurs 2009; 25: 111-9.
Frid I, Bergbom I, Haljamäe H. No going back: narratives by close relatives of the braindead patient. Intensive Crit Care Nurs 2001; 17: 263-78.
Noyes J. The impact of knowing your child is critically ill: a qualitative study of mothers’ experiences. J Adv Nurs 1999; 29: 427-35.
Bournes DA, Mitchell GJ. Waiting: the experience of persons in a critical care waiting room. Res Nurs Health 2002; 25: 58-67.
Fridh I, Bergbom I. To watch - a study of the concept. Nord J Nurs Res Clin Stud/Vård i Norden 2006; 26: 04-08.
Jamerson PA, Scheibmeir M, Bott MJ, Crighton F, Hinton RH, Cobb AK. The experiences of families with a relative in the intensive care unit. Heart Lung 1996; 25: 467-74.
Plowfield LA. Living a nightmare: family experiences of waiting following neurological crisis. J Neurosci Nurs 1999; 31: 231-8.
Knutsson S, Samuelsson IP, Hellström A-L, Bergbom I. Children's experiences of visiting a seriously ill/injured relative on an adult intensive care unit. J Adv Nurs 2008; 61: 154-62.
Fontana JS. A sudden, life-threatening medical crisis: the family's perspective. ANS Adv Nurs Sci 2006; 29: 222-31.
Dreyer A, Nortvedt P. Sedation of ventilated patients in intensive care units: relatives’ experiences. J Adv Nurs 2008; 61: 549-56.
Ågård AS, Harder I. Relatives’ experiences in intensive care-finding a place in a world of uncertainty. Intensive Crit Care Nurs 2007; 23: 170-7.
Engström Å, Söderberg S. The experiences of partners of critically ill persons in an intensive care unit. Intensive Crit Care Nurs 2004; 20: 299-308.
Gavey J. Parental perceptions of neonatal care. J Neonatal Nurs 2007; 13: 199-206.
Larsson I-M, Wallin E, Rubertsson S, Kristoferzon M-L. Relatives’ experiences during the next of kin's hospital stay after surviving cardiac arrest and therapeutic hypothermia. Eur J Cardiovasc Nurs 2013; 12: 353-9.
Nolen KB, Warren NA. Meeting the needs of family members of ICU patients. Crit Care Nurs Q 2014; 37: 393-406.
Wigert H, Dellenmark Blom M, Bry K. Parents’ experiences of communication with neonatal intensive-care unit staff: an interview study. BMC Pediatr 2014; 14: 304.
Eggenberger SK, Nelms TP. Being family: the family experience when an adult member is hospitalized with a critical illness. J Clin Nurs 2007; 16: 1618-28.
McKiernan M, McCarthy G. Family members’ lived experience in the intensive care unit: a phemenological study. Intensive Crit Care Nurs 2010; 26: 254-61.
Verhaeghe STL, van Zuuren FJ, Defloor T, Duijnstee MSH, Grypdonck MHF. How does information influence hope in family members of traumatic coma patients in intensive care unit? J Clin Nurs 2007; 16: 1488-97.
Hinkle JL, Fitzpatrick E. Needs of American relatives of intensive care patients: perceptions of relatives, physicians and nurses. Intensive Crit Care Nurs 2011; 27: 218-25.
Majdalani MN, Doumit MAA, Rahi AC. The lived experience of parents of children admitted to the pediatric intensive care unit in Lebanon. Int J Nurs Stud 2014; 51: 217-25.
Söderström I-M, Saveman B-I, Benzein E. Interactions between family members and staff in intensive care units-an observation and interview study. Int J Nurs Stud 2006; 43: 707-16.
Schwarzkopf D, Behrend S, Skupin H, Westermann I, Riedemann N, Pfeifer R, Günther A, Witte OW, Reinhart K, Hartog CS. Family satisfaction in the intensive care unit: a quantitative and qualitative analysis. Intensive Care Med 2013; 39: 1071-9.
Stremler R, Dhukai Z, Wong L, Parshuram C. Factors influencing sleep for parents of critically ill hospitalised children: a qualitative analysis. Intensive Crit Care Nurs 2011; 27: 37-45.
Kisorio LC, Langley GC. End-of-life care in intensive care unit: family experiences. Intensive Crit Care Nurs 2016; 35: 57-65.
Hansen L, Rosenkranz SJ, Mularski RA, Leo MC. Family perspectives on overall care in the intensive care unit. Nurs Res 2016; 65: 446-54.
Olausson S, Ekebergh M, Lindahl B. The ICU patient room: views and meanings as experienced by the next of kin: a phenomenological hermeneutical study. Intensive Crit Care Nurs 2012; 28: 176-84.
Tramm R, Ilic D, Murphy K, Sheldrake J, Pellegrino V, Hodgson C. Experience and needs of family members of patients treated with extracorporeal membrane oxygenation. J Clin Nurs 2016; 26: 1657-68.
Henrich NJ, Dodek P, Heyland D, Cook D, Rocker G, Kutsogiannis D, Dale C, Fowler R, Ayas N. Qualitative analysis of an intensive care unit family satisfaction survey. Crit Care Med 2011; 39: 1000-5.
Knutsson S, Bergbom I. Children's thoughts and feelings related to visiting critically ill relatives in an adult ICU: a qualitative study. Intensive Crit Care Nurs 2016; 32: 33-41.
Wiegand D. In their own time: the family experience during the process of withdrawal of life-sustaining therapy. J Palliat Med 2008; 11: 1115-21.
Fry S, Warren NA. Perceived needs of critical care family members: a phenomenological discourse. Crit Care Nurs Q 2007; 30: 181-8.
Hall EOC. A double concern: Danish grandfathers’ experiences when a small grandchild is critically ill. Intensive Crit Care Nurs 2004; 20: 14-21.
Wåhlin I, Ek A, Idvall E. Empowerment from the perspective of next of kin in intensive care. J Clin Nurs 2009; 18: 2580-7.
Carnevale FA. A description of stressors and coping strategies among parents of critically ill children-a preliminary study. Intensive Care Nurs 1990; 6: 04-11.
Löf S, Sandström A, Engström Å. Patients treated with therapeutic hypothermia after cardiac arrest: relatives’ experiences. J Adv Nurs 2010; 66: 1760-8.
Schmidt M, Azoulay E. Having a loved one in the ICU: the forgotten family. Curr Opin Crit Care 2012; 18: 540-7.
Kentish-Barnes N, Lemiale V, Chaize M, Pochard F, Azoulay E. Assessing burden in families of critical care patients. Crit Care Med 2009; 37: 448-56.
Martinsen K. Omsorg, Sykepleie og Medisin : Historisk-Filosofiske Essays [Caring, Nursing and Medicine: Historical-Philosophical Essays]. 1989, Tano, Oslo.
Anåker A, Elf M. Sustainability in nursing: a concept analysis. Scand J Caring Sci 2014; 28: 381-9.
Goodman B. Developing the concept of sustainability in nursing. Nurs Philos 2016; 17: 298-306.
Davidson JE, Powers K, Hedayat KM, Tieszen M, Kon AA, Shepard E, Spuhler V, Todres ID, Levy M, Barr J, Ghandi R, Hirsch G, Armstrong D. Clinical practice guidelines for support of the family in the patient-centered intensive care unit: American College of Critical Care Medicine Task Force 2004-2005. Crit Care Med 2007; 35: 605-22.
Khalaila R. Meeting the needs of patients’ families in intensive care units. Nurs Stand 2014; 28: 37-44.
Hoseini Azizi T, Hasanzadeh F, Esmaily H, Ehsaee MR. The effect of family members’ supportive presence in neurological intensive care unit on their anxiety. Mod Care J 2015; 12: 23-30.
Bossaert LL, Perkins GD, Askitopoulou H, Raffay VI, Greif R, Haywood KL, Mentzelopoulos SD, Nolan JP, Van de Voorde P, Xanthos TT. European Resuscitation Council Guidelines for Resuscitation 2015: Section 11. The ethics of resuscitation and end-of-life decisions. Resuscitation 2015; 95: 302-11.
Goldberger ZD, Nallamothu BK, Nichol G, Chan PS, Curtis JR, Cooke CR. Policies allowing family presence during resuscitation and patterns of care during in-hospital cardiac arrest. Circ Cardiovasc Qual Outcomes 2015; 8: 226-34.
McClenathan CBM, Torrington CKG, Uyehara CFT. Family member presence during cardiopulmonary resuscitation: a survey of US and international critical care professionals. Chest 2002; 122: 2204-11.
Miller JH, Stiles A. Family presence during resuscitation and invasive procedures: the nurse experience. Qual Health Res 2009; 19: 1431-42.
Duran CR, Oman KS, Abel JJ, Koziel VM, Szymanski D. Attitudes toward and beliefs about family presence: a survey of healthcare providers, patients’ families, and patients. Am J Crit Care 2007; 16: 270-9.
Adams JA, Anderson RA, Docherty SL, Tulsky JA, Steinhauser KE, Bailey DE. Nursing strategies to support family members of ICU patients at high risk of dying. Heart Lung 2014; 43: 406-15.
Malterud K. Qualitative research: standards, challenges, and guidelines. Lancet 2001; 358: 483-8.
Morse JM, Barrett M, Mayan M, Olson K, Spiers J. Verification strategies for establishing reliability and validity in qualitative research. Int J Qual Methods 2002; 1: 13-22.
Åstedt-Kurki P, Kaunonen M. Author Guidelines, http://onlinelibrary.wiley.com/journal/10.1111/%28ISSN%291471-6712/homepage/ForAuthors.html (last accessed 26 October 2017). - Grant Information: The Research and Development Council Fyrbodal Sweden
- Contributed Indexing: Keywords: Rodgers’ evolutionary method of concept analysis; critical care; family members; intensive care; waiting
- الموضوع: Date Created: 20190314 Date Completed: 20200217 Latest Revision: 20200217
- الموضوع: 20221213
- الرقم المعرف: 10.1111/scs.12660
- الرقم المعرف: 30866083
- المصدر:
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