Integrated respiratory and palliative care leads to high levels of satisfaction: a survey of patients and carers.

Publisher: BioMed Central Country of Publication: England NLM ID: 101088685 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-684X (Electronic) Linking ISSN: 1472684X NLM ISO Abbreviation: BMC Palliat Care Subsets: MEDLINE

Original Publication: London : BioMed Central, [2002-

Delivery of Health Care, Integrated/*standards ; Palliative Care/*methods ; Patients/*psychology ; Respiratory Therapy/*methods; Aged ; Caregivers/psychology ; Caregivers/statistics & numerical data ; Delivery of Health Care, Integrated/methods ; Female ; Humans ; Male ; Middle Aged ; Palliative Care/standards ; Patient Satisfaction ; Patients/statistics & numerical data ; Quality of Health Care/standards ; Quality of Health Care/statistics & numerical data ; Respiratory Therapy/standards ; Surveys and Questionnaires

Background: The Advanced Lung Disease Service is a unique, new model of integrated respiratory and palliative care, which aims to address the unmet needs of patients with advanced, non-malignant, respiratory diseases. This study aimed to explore patients' and carers' experiences of integrated palliative care and identify valued aspects of care.
Methods: All current patients of the integrated service and their carers were invited to complete a confidential questionnaire by post or with an independent researcher.
Results: Eighty-eight responses were received from 64 (80.0%) eligible patients and from 24 (60%) eligible carers. Most participants (84, 95.5%) believed the integrated service helped them to manage breathlessness and nearly all participants (87, 98.9%) reported increased confidence managing symptoms. One third of patients (34.4%) had received a nurse-led domiciliary visit, with nearly all regarding this as helpful. Most participants believed the integrated respiratory and palliative care team listened to them carefully (87, 98.9%) with opportunities to express their views (88, 100%). Highly valued aspects of the service were continuity of care (82, 93.2%) and long-term care (77, 87.5%). Three quarters of participants (66, 75.0%) rated their care as excellent, with 20.5% rating it as very good. Nearly all (87, 98.9%) participants reported that they would recommend the service to others.
Conclusions: Patients and carers expressed high levels of satisfaction with this model of integrated respiratory and palliative care. Continuity of care, high quality communication and feeling cared for were greatly valued and highlight simple but important aspects of care for all patients.

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Keywords: Attitudes; Dyspnea; Integrated care; Palliative care; Satisfaction; Survey

Date Created: 20190121 Date Completed: 20190617 Latest Revision: 20240607

20240607

PMC6339689

10.1186/s12904-019-0390-0

30660204