Fairness, severe intellectual disability, and the special case of transplantation.

Publisher: Munksgaard Country of Publication: Denmark NLM ID: 9802574 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1399-3046 (Electronic) Linking ISSN: 13973142 NLM ISO Abbreviation: Pediatr Transplant Subsets: MEDLINE

Original Publication: Copenhagen ; Malden, MA : Munksgaard, c1997-

Intellectual Disability*; Health Care Rationing/*ethics ; Organ Transplantation/*ethics ; Patient Selection/*ethics ; Social Justice/*ethics; Child ; Health Care Rationing/methods ; Humans ; Organ Transplantation/methods ; Organ Transplantation/psychology ; Outcome Assessment, Health Care ; Power, Psychological ; Social Justice/psychology

Children with severe intellectual disability have historically been excluded from solid organ transplantation. The purpose of this article was to review the arguments for excluding this population, including claims of poorer recipient and graft survival, a lower QoL as pediatric recipients become adults, and poorer outcomes for other, more deserving pediatric transplant candidates, and make the case that these arguments are no longer persuasive. We will argue that pediatric transplant centers for reasons of social justice, value of relationships, power differential, and fairness should generally not consider intellectual ability or disability as a criterion when making decisions regarding organ transplant eligibility.
(© 2018 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.)

Keywords: ethics; intellectual disability; transplant

Date Created: 20180523 Date Completed: 20181107 Latest Revision: 20191210

20221213

10.1111/petr.13228

29785805