Cultural Adaptation and Translation of Outreach Materials on Autism Spectrum Disorder.

Publisher: Springer Country of Publication: United States NLM ID: 7904301 Publication Model: Print Cited Medium: Internet ISSN: 1573-3432 (Electronic) Linking ISSN: 01623257 NLM ISO Abbreviation: J Autism Dev Disord Subsets: MEDLINE

Publication: <2006- >: New York, NY : Springer
Original Publication: New York, Plenum Press.

Community-Institutional Relations* ; Cultural Competency* ; Pamphlets* ; Translating*; Asian/*education ; Autism Spectrum Disorder/*psychology ; Autism Spectrum Disorder/*therapy ; Mothers/*education; Adult ; Autism Spectrum Disorder/diagnosis ; Child ; Child, Preschool ; Cross-Cultural Comparison ; Culture ; Early Diagnosis ; Female ; Humans ; Male ; United States

In order to connect with families and influence treatment trajectories, outreach materials should address cultural perceptions of the condition, its causes, and post-diagnostic care. This paper describes the cultural adaptation and translation of the Autism Speaks First 100 Days Kit into Korean for the purpose of improving autism spectrum disorder (ASD) diagnosis, assessment, and interventions. The goal of this study is to describe a methodology for future cross-cultural adaptations and translations of outreach materials on ASD, using the Autism Speaks First 100 Days Kit as an exemplar. The research involved two stages of qualitative interviews: unstructured individual and group interviews with 19 Korean child health and education professionals in Queens, NY, followed by structured cultural consensus modeling interviews with 23 Korean mothers, with and without children with ASD, in Queens, NY and the greater Washington, DC area. We conclude that a systematic approach to cultural translation of outreach materials is feasible. Cultural consensus modeling yielded information about numerous barriers to care, had a demonstrable effect on the translation of the kit, and was efficient when employed with coherent segments of a relatively homogeneous population and focused on a single condition.

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K23 MH099179 United States MH NIMH NIH HHS

Date Created: 20150312 Date Completed: 20160216 Latest Revision: 20231111

20250114

PMC4870835

10.1007/s10803-015-2397-6

25758819