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Adolescents with implantable cardioverter defibrillators: a patient and parent perspective.

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  • المؤلفون: Rahman B;Rahman B; Macciocca I; Sahhar M; Kamberi S; Connell V; Duncan RE
  • المصدر:
    Pacing and clinical electrophysiology : PACE [Pacing Clin Electrophysiol] 2012 Jan; Vol. 35 (1), pp. 62-72. Date of Electronic Publication: 2011 Oct 03.
  • نوع النشر :
    Journal Article; Research Support, Non-U.S. Gov't
  • اللغة:
    English
  • معلومة اضافية
    • المصدر:
      Publisher: Futura Pub. Co. Country of Publication: United States NLM ID: 7803944 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1540-8159 (Electronic) Linking ISSN: 01478389 NLM ISO Abbreviation: Pacing Clin Electrophysiol Subsets: MEDLINE
    • بيانات النشر:
      Original Publication: Mount Kisco, N. Y. : Futura Pub. Co., c1978-
    • الموضوع:
      Attitude to Health*; Heart Failure/*prevention & control ; Heart Failure/*psychology ; Parents/*psychology ; Patient Acceptance of Health Care/*psychology ; Quality of Life/*psychology; Adolescent ; Adult ; Australia ; Female ; Humans ; Male
    • نبذة مختصرة :
      Background: An implantable cardioverter defibrillator (ICD) is a device used in the treatment of individuals with life-threatening cardiac conditions. These include genetic disorders such as long QT syndrome, hypertrophic cardiomyopathy, and Brugada syndrome, all of which have the propensity to cause sudden cardiac death. Adults with ICDs consistently report elevated levels of anxiety and depression, as well as negative lifestyle changes associated with the device. Compared to older ICD recipients, young patients face decades of life with the device and the long-term impact and implications are important to consider. This research explores the experiences of adolescents living with an ICD. Parents of these adolescents were also included to explore the impact on them as the primary caregivers.
      Methods: A qualitative approach was chosen to explore the lived experience; semistructured interviews with six adolescents and six parents were conducted from which a number of key themes emerged.
      Results: The experiences described by participants included the restrictions adolescents face, the ICD shock experience, and ongoing challenges post-ICD implantation. However, both adolescents and parents were able to adjust to life after receiving an ICD and described several benefits associated with having the device. Findings also emerged relating to communication between health professionals and adolescents, and the limitations adolescents impose on themselves post-ICD implantation.
      Conclusion: These findings have important implications for clinical practice and may help guide medical management for adolescents with ICDs and their families.
      (©2011, The Authors. Journal compilation ©2011 Wiley Periodicals, Inc.)
    • الموضوع:
      Date Created: 20111005 Date Completed: 20120522 Latest Revision: 20120113
    • الموضوع:
      20240829
    • الرقم المعرف:
      10.1111/j.1540-8159.2011.03229.x
    • الرقم المعرف:
      21967596