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Delay in diagnosis of muscle disorders depends on the subspecialty of the initially consulted physician.

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  • المؤلفون: Spuler S;Spuler S; Stroux A; Kuschel F; Kuhlmey A; Kendel F
  • المصدر:
    BMC health services research [BMC Health Serv Res] 2011 May 04; Vol. 11, pp. 91. Date of Electronic Publication: 2011 May 04.
  • نوع النشر :
    Journal Article; Research Support, Non-U.S. Gov't
  • اللغة:
    English
  • معلومة اضافية
    • المصدر:
      Publisher: BioMed Central Country of Publication: England NLM ID: 101088677 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-6963 (Electronic) Linking ISSN: 14726963 NLM ISO Abbreviation: BMC Health Serv Res Subsets: MEDLINE
    • بيانات النشر:
      Original Publication: London : BioMed Central, [2001-
    • الموضوع:
      Delayed Diagnosis*; Medicine/*statistics & numerical data ; Muscular Diseases/*diagnosis ; Primary Health Care/*statistics & numerical data ; Referral and Consultation/*statistics & numerical data; Adult ; Aged ; Aged, 80 and over ; Female ; Germany ; Humans ; Male ; Middle Aged ; Muscular Dystrophies/diagnosis ; Neurology/statistics & numerical data ; Self Report ; Statistics as Topic ; Statistics, Nonparametric ; Surveys and Questionnaires ; Time Factors ; Young Adult
    • نبذة مختصرة :
      Background: New therapeutic strategies in muscular dystrophies will make a difference in prognosis only if they are begun early in the course of the disease. Therefore, we investigated factors that influence the time to diagnosis in muscle dystrophy patients.
      Methods: A sample of 101 patients (mean age 49 years; range 19-80; 44% women) with diagnosed muscle dystrophies from neurological practices and the neuromuscular specialty clinic in Berlin, Germany, was invited to participate. Time from first consultation to diagnosis, subspecialty of physician, and sociodemographic data were assessed with self-report questionnaires. The association between time to diagnosis and potential predictors (subspecialty of initially consulted physician, diagnoses, gender, and age at onset) was modeled with linear regression analysis.
      Results: The mean time span between first health-care contact and diagnosis was 4.3 years (median 1). The diagnostic delay was significantly longer if patients were initially seen by a non-neurological specialist compared to a general practitioner (5.2 vs. 3.5 years, p = 0.047). Other factors that were independently associated with diagnostic delay were female gender and inherited muscle disease.
      Conclusion: Action to improve clinical awareness of muscle diseases in non-neurological specialists is needed.
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    • الموضوع:
      Date Created: 20110506 Date Completed: 20110929 Latest Revision: 20211020
    • الموضوع:
      20240829
    • الرقم المعرف:
      PMC3112398
    • الرقم المعرف:
      10.1186/1472-6963-11-91
    • الرقم المعرف:
      21542919