Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals.

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المؤلفون: Walton, Holly¹ (AUTHOR) ; Ng, Pei Li¹ (AUTHOR); Simpson, Amy^1,2 (AUTHOR); Bloom, Lara³ (AUTHOR); Chitty, Lyn S.^4,5 (AUTHOR); Fulop, Naomi J.¹ (AUTHOR); Hunter, Amy² (AUTHOR); Jones, Jennifer² (AUTHOR); Kai, Joe⁶ (AUTHOR); Kerecuk, Larissa^7,8 (AUTHOR); Kokocinska, Maria⁷ (AUTHOR); Leeson-Beevers, Kerry⁹ (AUTHOR); Parkes, Sharon⁷ (AUTHOR); Ramsay, Angus I. G.¹ (AUTHOR); Sutcliffe, Alastair¹⁰ (AUTHOR); Taylor, Christine¹ (AUTHOR); Morris, Stephen¹¹ (AUTHOR)
المصدر:
Orphanet Journal of Rare Diseases. 11/23/2023, Vol. 18 Issue 1, p1-22. 22p.