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Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals.
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- المؤلفون: Walton, Holly1 (AUTHOR) ; Ng, Pei Li1 (AUTHOR); Simpson, Amy1,2 (AUTHOR); Bloom, Lara3 (AUTHOR); Chitty, Lyn S.4,5 (AUTHOR); Fulop, Naomi J.1 (AUTHOR); Hunter, Amy2 (AUTHOR); Jones, Jennifer2 (AUTHOR); Kai, Joe6 (AUTHOR); Kerecuk, Larissa7,8 (AUTHOR); Kokocinska, Maria7 (AUTHOR); Leeson-Beevers, Kerry9 (AUTHOR); Parkes, Sharon7 (AUTHOR); Ramsay, Angus I. G.1 (AUTHOR); Sutcliffe, Alastair10 (AUTHOR); Taylor, Christine1 (AUTHOR); Morris, Stephen11 (AUTHOR)
- المصدر:
Orphanet Journal of Rare Diseases. 11/23/2023, Vol. 18 Issue 1, p1-22. 22p.
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