Evaluating the responsiveness of the Endometriosis Health Profile Questionnaire: the EHP-30.

Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print Cited Medium: Print ISSN: 0962-9343 (Print) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE

Publication: 2005- : Netherlands : Springer Netherlands
Original Publication: Oxford, UK : Rapid Communications of Oxford, Ltd, c1992-

Quality of Life* ; Sickness Impact Profile* ; Treatment Outcome*; Endometriosis/*psychology ; Endometriosis/*surgery ; Psychometrics/*instrumentation ; Surveys and Questionnaires/*standards; Adult ; Endometriosis/physiopathology ; England ; Female ; Follow-Up Studies ; Humans ; Middle Aged ; Pain Measurement/psychology ; Sensitivity and Specificity ; Social Support ; Time Factors

Objectives: To evaluate the sensitivity to change of the Endometriosis Health Profile-30 (EHP-30) questionnaire.
Setting: The Women's Center, John Radcliffe Hospital, Oxford.
Design: Postal survey to 66 women undergoing conservative surgery for the treatment of endometriosis-associated pain. The EHP-30 and the Short Form-36 (SF-36) were administered 2 weeks before the operation, and 4 months post-operatively. At T2 a transition question was included to evaluate changes in patients health status. To evaluate responsiveness effect sizes, standardised response means, the index of responsiveness and the minimally and clinically important differences were calculated.
Results: Forty (66.6%) patients returned the questionnaires at time 1 and 2. Overall less responsive effect size scores were found for the SF-36 (0.1-0.5) compared to the EHP-30 (-0.1-1.1) for all patients who had undergone treatment. Minimally important differences and the index of responsiveness were overall higher for the EHP-30 (0.4-2.0) compared to the SF-36 (0.1-1.0). Change scores for four of the five scales were significantly correlated with women's responses to the transition question.
Conclusions: Results suggest that the EHP-30 is sensitive to change. Its application in clinical trials should prove beneficial in assessing the impact of medical and surgical interventions upon quality of life for women with endometriosis.

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Date Created: 20040508 Date Completed: 20040702 Latest Revision: 20220410

20231215

10.1023/B:QURE.0000021316.79349.af

15130032