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Academic Journal

Pain interferes with daily activities, emotions and sleep in adults with severe, moderate and mild haemophilia: A national cross-sectional survey.

  • Authors : Chantrain VA; Research Group MOVANT, Department of Rehabilitation Sciences and Physiotherapy (REVAKI), University of Antwerp, Wilrijk, Belgium.; Haemostasis and Thrombosis Unit, Division of Hematology, Cliniques universitaires Saint-Luc, Université Catholique de Louvain (UCLouvain), Brussels, Belgium.

Subjects: Quality of Life*/Quality of Life*/Quality of Life*/psychology ; Hemophilia A*/Hemophilia A*/Hemophilia A*/epidemiology; Adult

  • Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2023 Mar; Vol. 29 (2), pp. 521-529. Date of Electronic Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Editorial & Opinion

Health-related quality of life and associated factors: Results from the haemophilia QOL questionnaire for adults (Haem-A-QOL) in a low-income country with public policies to improve haemophilia care.

  • Authors : Soares BMD; Graduate Program in Health Sciences, Higher Education School of Health Sciences (ESCS), Brasília, Federal District, Brazil.; Brasília Hemocentro Foundation, Brasília, Federal District, Brazil.

Subjects: Hemophilia A*/Hemophilia A*/Hemophilia A*/epidemiology ; Quality of Life*; Adult

  • Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2022 Sep; Vol. 28 (5), pp. e125-e128. Date of Electronic Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Academic Journal

Big picture initiatives in bleeding disorders.

Subjects: Hemophilia A*/Hemophilia A*/Hemophilia A*/therapy ; Quality of Life*; Adult

  • Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2022 May; Vol. 28 Suppl 4, pp. 53-60.Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print Cited Medium:

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Academic Journal

Effects of a supervised therapeutic exercise program on musculoskeletal health and gait in patients with haemophilia: A pilot study.

  • Authors : Deniz V; Department of Physiotherapy and Rehabilitation, Gazi University Faculty of Health Sciences, Ankara, Turkey.; Guzel NA

Subjects: Hemophilia A*/Hemophilia A*/Hemophilia A*/complications ; Hemophilia A*/Hemophilia A*/Hemophilia A*/therapy ; Quality of Life*

  • Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2022 Jan; Vol. 28 (1), pp. 166-175. Date of Electronic Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Academic Journal

Patient preferences for gene therapy in haemophilia: Results from the PAVING threshold technique survey.

  • Authors : van Overbeeke E; Clinical Pharmacology and Pharmacotherapy, University of Leuven, Leuven, Belgium.; Hauber B

Subjects: Hemophilia A*/Hemophilia A*/Hemophilia A*/genetics ; Hemophilia A*/Hemophilia A*/Hemophilia A*/therapy ; Quality of Life*

  • Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2021 Nov; Vol. 27 (6), pp. 957-966. Date of Electronic Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Academic Journal

European principles of care for women and girls with inherited bleeding disorders.

Subjects: Hemophilia A*/Hemophilia A*/Hemophilia A*/diagnosis ; Hemophilia A*/Hemophilia A*/Hemophilia A*/therapy ; Quality of Life*

  • Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2021 Sep; Vol. 27 (5), pp. 837-847. Date of Electronic Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Editorial & Opinion

Comparison of quality of life, and emotional and functional profiles in older people with and without severe haemophilia.

  • Authors : Riva S; Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre, Fondazione IRCCS Ca' Granda Maggiore Hospital Foundation, Milan, Italy.; Department of Psychology and Pedagogic Science, St Mary's University, London, UK.

Subjects: Hemophilia A* ; Quality of Life*; Aged

  • Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2021 Jul; Vol. 27 (4), pp. e525-e529. Date of Electronic Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Academic Journal

An evaluation of PROMIS health domains in adults with haemophilia: A cross-sectional study.

  • Authors : Barry V; Emory University School of Medicine, Atlanta, GA, USA.; Buckner TW

Subjects: Hemophilia A*/Hemophilia A*/Hemophilia A*/complications ; Quality of Life*; Adult

  • Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2021 May; Vol. 27 (3), pp. 375-382. Date of Electronic Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Academic Journal

Health-related quality of life and health status in adolescent and adult people with haemophilia A without factor VIII inhibitors-A non-interventional study.

  • Authors : Oldenburg J; Department of Experimental Haematology and Transfusion Medicine, University Clinic Bonn, Bonn, Germany.; Tran H

Subjects: Hemophilia A*/Hemophilia A*/Hemophilia A*/drug therapy ; Quality of Life*; Adolescent

  • Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2021 May; Vol. 27 (3), pp. 398-407. Date of Electronic Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Academic Journal

Evidence of a disability paradox in patient-reported outcomes in haemophilia.

  • Authors : O'Hara J; HCD Economics, Daresbury, UK.; Faculty of Health and Social Care, University of Chester, Chester, UK.

Subjects: Hemophilia A* ; Quality of Life*; Health Status

  • Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2021 Mar; Vol. 27 (2), pp. 245-252. Date of Electronic Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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