Social participation and hemophilia: Self‐perception, social support, and their influence on boys in Canada

Abstract Background Patients with hemophilia may experience joint damage, which can impair participation, yet few studies have examined the impact hemophilia may have on social participation and quality of life. Objectives The aims of this study are to assess the relationship between patient social participation and self‐perception, social support, and impact on the family. Patients/Methods A random representative sample of 50 boys with hemophilia from The Hospital for Sick Children, Toronto, Canada, completed measures of social participation (Participation Scale for kids), self‐perception (Self‐Perception Profile for children and adolescents), and social support (Social Support Scale for children). Participants' parents completed Family Impact Module of the Pediatric Quality of Life Inventory. Data were analyzed using Pearson product‐moment correlations. Results Social participation was strongly correlated with self‐perception subscales Social Acceptance (r = −0.5, p =