نبذة مختصرة : Spáð er mikilli fjölgun krabbameinstilfella á Íslandi næstu áratugi. Mikilvægt er að fá aukna innsýn í reynslu þeirra sem greinast með krabbamein með það að markmiði að bæta lífsgæði þeirra og horfur. ; INTRODUCTION: In the coming years, an increase in the number of cancer cases can be expected in Iceland. It is important to gain more insight into the experiences of the diagnostic- and treatment phase among those diagnosed with cancer to improve quality of life and life expectancy. METHODS: The study included 4575 individuals diagnosed with cancer between 2015 and 2019 in Iceland, 18 years or older at the time. Participants answered an on-line questionnaire once between 2020 and 2021. RESULTS: A total of 1672 (37%) individuals responded to the questionnaire. The mean age at diagnosis was 59 years (±12). The majority of participants were informed on their cancer diagnosis during a doctor's appointment (67%), but a quarter (25%) received the information by telephone. A total of 77% of participants were satisfied with the diagnostic process, thereof relatively fewer women than men (73% vs. 83%) (p<0,001). Fewer of those who received the cancer diagnosis by telephone were pleased with the diagnostic process (62%) compared with those receiving information during a doctor's appointment (85%) (p<0,001). More women (58%) than men (33%) expressed the need for support regarding mental well-being from healthcare professionals during the diagnostic process (p<0.001). In 2015, 36% of participants started treatment more than month after diagnosis, compared with 51% in 2019. The need for various specific resources during treatment, e.g. physiotherapy, psychological services or nutritional counseling were regularly assessed among 20-30% of participants. CONCLUSION: A quarter of respondents diagnosed with cancer received information about the diagnosis over the phone instead of an interview. There is a suggestion that the time from diagnosis to the start of cancer treatment is increasing. It is necessary to assess ...
Relation: Læknablaðið; 108(10); http://www.scopus.com/inward/record.url?scp=85138468337&partnerID=8YFLogxK; Torfadóttir , J E , Einarsdóttir , S E , Helgason , A R , Þórisdottir , B , Gudmundsdottir , R B , Unnarsdottir , A B , Tryggvadottir , L , Birgisson , H & Thorvaldsdottir , G H 2022 , ' Áttavitinn – rannsókn á reynslu einstaklinga af greiningu og meðferð krabbameina á Íslandi árin 2015-2019 ' , Læknablaðið , bind. 108 , nr. 10 , bls. 447-454 . https://doi.org/10.17992/lbl.2022.10.710; 5078ee10-fd1a-4102-8834-b826804c9126; 85138468337; https://hdl.handle.net/20.500.11815/3771
No Comments.