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Dementia in People with Severe/Profound Intellectual (And Multiple) Disabilities: Practice-Based Observations of Symptoms

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  • المؤلفون: Wissing, Maureen B. G. (ORCID Wissing, Maureen B. G. (ORCID 0000-0003-3371-4547); Fokkens, Andrea S. (ORCID Fokkens, Andrea S. (ORCID 0000-0003-4110-7659); Dijkstra, Roos (ORCID Dijkstra, Roos (ORCID 0000-0002-5636-4140); Hobbelen, Johannes S. M. (ORCID Hobbelen, Johannes S. M. (ORCID 0000-0003-1852-0955); van der Putten, Annette A. J. (ORCID van der Putten, Annette A. J. (ORCID 0000-0003-4226-8147); De Deyn, Peter P. (ORCID De Deyn, Peter P. (ORCID 0000-0002-2228-2964); Waninge, Aly (ORCID Waninge, Aly (ORCID 0000-0002-2316-2577); Dekker, Alain D. (ORCID Dekker, Alain D. (ORCID 0000-0001-8771-218X)
  • اللغة:
    English
  • المصدر:
    Journal of Mental Health Research in Intellectual Disabilities. 2022 15(4):364-393.
  • الموضوع:
    2022
  • نوع التسجيلة:
    Journal Articles
    Reports - Research
  • معلومة اضافية
    • Peer Reviewed:
      Y
    • المصدر:
      30
    • الموضوع:
      Dementia; Severe Intellectual Disability; Multiple Disabilities; Symptoms (Individual Disorders); Daily Living Skills; Behavior Change; Psychological Patterns; Anxiety; Eating Habits; Communication Skills; Verbal Communication; Psychomotor Skills; Down Syndrome; Foreign Countries; Allied Health Personnel; Attitudes; Family Attitudes; Alzheimers Disease
    • الموضوع:
      Netherlands
    • الرقم المعرف:
      10.1080/19315864.2022.2061092
    • ISSN:
      1931-5864
      1931-5872
    • نبذة مختصرة :
      Introduction: Observable dementia symptoms are hardly studied in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D). Insight in symptomatology is needed for timely signaling/diagnosis. This study aimed to identify practice-based observations of dementia symptoms in this population. Methods: Care professionals and family members were invited to complete a survey about symptoms. Quantitatively analyzed survey data were further deepened through semi-structured interviews with care professionals having vast experience in signaling/diagnosing dementia in this population. Symptoms were categorized using a symptom matrix. Results: Survey respondents and interviewees frequently observed a decline in activities of daily living (ADL) functioning and behavioral and psychological changes, like increased irritability, anxiety, apathy and decreased eating/drinking behavior. Cognitive symptoms were particularly recognized in persons with verbal communication and/or walking skills. To lesser extent motor changes and medical comorbidities were reported. Conclusion: Increased insight in dementia symptoms contributes to developing a dedicated screening instrument for dementia in people with SPI(M)D.
    • نبذة مختصرة :
      As Provided
    • الموضوع:
      2023
    • الرقم المعرف:
      EJ1367648