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Parent perceptions of quality of life and healthcare satisfaction for children with medical complexity.

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اقرأ على الانترنت اقرأ أكثر حفظ في قائمتي
  • معلومة اضافية
    • المصدر:
      Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101490944 Publication Model: Print Cited Medium: Internet ISSN: 1875-8894 (Electronic) Linking ISSN: 18745393 NLM ISO Abbreviation: J Pediatr Rehabil Med Subsets: MEDLINE
    • بيانات النشر:
      Original Publication: Amsterdam : IOS Press
    • الموضوع:
      Ambulatory Care* ; Comprehensive Health Care* ; Quality of Life*; Chronic Disease/*rehabilitation ; Disabled Children/*rehabilitation ; Parents/*psychology ; Patient Satisfaction/*statistics & numerical data; Child ; Child Welfare ; Child, Preschool ; Female ; Humans ; Male ; Perception ; Surveys and Questionnaires
    • نبذة مختصرة :
      Purpose: To describe parent perceptions of their child's quality of life (QOL) and their satisfaction with health care for a group of children with medical complexity (CMC), and to determine whether parent perceptions of child well-being are associated with QOL and health care satisfaction.
      Methods: Participants were parents or legal guardians of children enrolled in a novel program of intensive outpatient care for CMC. Participants completed 7-item questionnaires to ascertain their perceptions of their child's well-being, QOL and health care satisfaction.
      Results: One hundred and ninety-one participants completed questionnaires (response rate 100%). 85% rated their child's QOL as excellent, very good, or good. 87% reported satisfaction with their child's health care. Fair or poor mental health was associated with fair or poor QOL (OR 1.09, p= 0.0002). More pain was associated with lower QOL (OR 1.07, p= 0.0022). Fewer days of play or school attendance were associated with lower satisfaction with health care (OR 1.09, p= 0.0003).
      Conclusion: Our study suggests that more pain and worse mental health are associated with parental perceptions of the quality of life for their CMC. Clinicians who care for these children and their families should carefully and repeatedly assess for these important symptoms.
    • Contributed Indexing:
      Keywords: Children with medical complexity; chronic pain; healthcare satisfaction; mental health; quality of life
    • الموضوع:
      Date Created: 20150928 Date Completed: 20160706 Latest Revision: 20150928
    • الموضوع:
      20221213
    • الرقم المعرف:
      10.3233/PRM-150323
    • الرقم المعرف:
      26409863